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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has Your Taste And Smell Been On Parkinson.

How Has Your Taste And Smell Been On Parkinson.

A MyParkinsonsTeam Member said:

when I was diagnosed about 10 years ago I enrolled in a study to determine the link between loss of smell and onset of Parkinson's . First I had an MRI done than a smell test the researcher had a pile of 40 or so scratch & sniff cards , she would scratch one and I would have to smell it and tell her what it smelled like. I would have a list of 4 items to choose from ,like 1 Motor oil 2 leather 3 apple pie 4 oranges. I would smell it and I couldn't tell exactly what it was but it didn't smell like oil so I would guess Apple Pie thinking I had a 50/50 chance it was either that or oranges . using this guess method I got 17 out of 40 right . the professor who ran the study figured I had about 20% of my sense of smell left . He was experimenting with this because he figured a high percentage of Parkinson's patients had experienced some loss of smell 2 to 4 years before symptoms start. If true it could be an early diagnoses tool ...

posted over 4 years ago
A MyParkinsonsTeam Member said:

I noticed my loss of smell about 20 years ago when I saw burning toast. (This was about 6 years before being diagnosed with PD. ) Since then some days my sense of smell is normal but mostly I have none. Some days I have smells stick in my nose but unable to recognise them. Other days I smell things that aren’t there. Luckily I haven’t lost my sense of taste.

posted almost 2 years ago
A MyParkinsonsTeam Member said:

Another Parkinson's symptom? Nose hallucinations. Talk to your doctor. I don't have them (yet)but I've heard of olfactory hallucinations.

Nancy (Copperhead)

posted over 4 years ago
A MyParkinsonsTeam Member said:

I lost both years ago. But I have a dog with a gas problem so I guess it is not too bad to no sense of smell

posted over 4 years ago
A MyParkinsonsTeam Member said:

One benefit is looking at me like I'm crazy because I just ate something so spicy off the menu with no effect. I really miss some of my favorite foods...

posted 4 months ago
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