I get it in my calf muscles and ham strings, but mostly only in the morning. I also get it in my neck if my meds are low and I let something stress me. It pulls my head to the right. I try to stretch and then relax, stretch and then relax my legs, or turn my head slowly if it's my neck, and stay as calm as possible. I also find moving often, even just a little bit seems to make things better. Maybe try stretching your stomach and chest by leaning your shoulders over a low back chair a few times gently to see if it helps. Exercise is supposed to be good for us when we can get ourselves to do it. I find if I go for a brisk walk when I feel up to it, I notice a benefit the next day.
I found dystonia very scary when I first started getting it because I didn't know if it would go away but that was almost three years ago and it hasn't really gotten worse.

It seemed to help a little bit but I just had it done in and takes anywhere from a few days to 3 weeks to kick in fully . Definitely better than Before

I have dystonia in my right foot.I suffer with tremors on my right side of my body . Curling fingers and toes which I get Botox to help with the pain. I have a lot of pain especially at nighttime time when my medication wears off . Diagnosed 1 year and a half ago at 43 .

I have dystonia in my neck and shoulders. I find relief with yoga and walking and massage. Yoga stretches muscles and walking works every muscle in your body. Massage helps to relax the muscles and it feels a bit like pampering..
Julieanne

@A MyParkinsonsTeam Member
Thanks for adding me to your team.Yes , it is nice that you can talk an others in the same boat know what you àre talking about an sometimes make a suggestion that may help.Take Care God Bless Hugs 😂😂😂😂

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