Jacinta...You are not alone. My husband is the same. Some days are good and we go shopping or out to eat and other days, we just have to stay home. Travel seems to be out of the question and I'm having difficulty dealing with the disappointment. But God is still God and He will get me through this. My husband doesn't like it any better than I do. He can't help it and neither can yours. Some times I like to pretend that we are in a facility and I'm the cook....I try to add little surprises to the meal...or when I go to the store, I like to pick up little surprises. He loves it. When we go somewhere, I try to take a different route and usually end up at McDonalds for ice cream. It is very essential that you get him out of the house everyday...even if just for a little drive. It's good for him. My sister-in-law had PD for 15 years and that is the advice my bro-in-law gave me.
I don't have a problem with going out socially. In fact, I really enjoy it. It's freedom. i am a very stubborn person, so I tend to go against the tide with this PD interloper. I will do what they say can't be done with PD. I exercise hard every day of the week. Why? Because I always feel better when I am done, and, it allows me to define my PD...not the other way around. The last thing you husband, and you, need to worry about, is what others think.
Here are a couple of good reads: "Shake Well Before Use" by Tom Isaac, and "If I Can Climb Mt. Kilimanjaro, Why Can't I Brush My Teeth?: Courage, Tenacity and Love Meet Parkinson's Disease" by Nan Little.
LindaJS, sometimes I do not feel like going out because my energy level is down and it seems like more work than I want to deal with at the time. My neurologist said that i need to stay active socially, physically and mentally so I usually make myself get in gear and go. Once I am where I was invited in the first place I am fine. It is easier to stay sitting in front of my TV or computer but also too much of that and I start to feel depressed which is really not good for PD.
@A MyParkinsonsTeam Member, I have never found a better start to my day than humor, even in prayer; you know, tease God a little. Lol My day has gone quite well since our little laugh fest this morning; I hope yours went well, at least better than yesterday?
Today is much better than my sleepless, frustrating, lonely night. I had breakfast with my friend and we got to talking about how naive we were in high school; we laughed until the tears came and we were getting laughter from people around us as well. A good start to the day...now, hopefully, a little nap.
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