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Hi all Hope today is a good day for most. Good days are precious.

My husband has been on sinemet for 7 years but even before he was diagnosed with PD he had dizzy spells and was tested for many things with no help for the dizziness. He used to have spells once in a while but now it is every day and we really dont know what to do about this dizzy stuff. It makes it hard to do anything. He gets around quite well with a cane but wonders if there is anything that might help someone who is on sinemet long… read more

A MyParkinsonsTeam Member said:

This is certainly not an answer. Don't think it is a question either, just one of life's little ironic speed bumps.
I just spent 24 hrs in hospital for observations after experiencing a quite severe dizzy and disorientation episode. Briefly, my wife and I were entering a store, having parked very close to store as usual. She went ahead of me , which is also usual, I am a little slow of gait. It was very hot, probably mid 90s. Anyway, halfway to the door I felt a little discomfort, and very quickly a dizzyness took over. I was able to stagger into the store where I was able to grab a shopping cart to supplement my cane, and made it into the store. Fortunately an alert lady shopper saw what was happening and managed to grab me before I fell. By the time I realized what was happening, a store employee had called 911 for an ambulance. The lady had asked my name and another employee had paged anyone with me to go to check out. I was very lucky that the right people were in my life at the right time. When the paramedics arrived, they took my blood pressure. I was seated at the time,, my pressure was low, something like 90 over 60. They then had me stand and took it again, result was 70 over 47. Needless to say the next stop was hospital emergency. A fluids drip helped stabilize me, I was admitted for observations at the request of my Primary care Dr.
after 24 hours o testing and monitoring, there was the usual conclusion. Could have been one or more of several causes. Go home and self monitor bp.
I am not being critical of the outcome, merely pointing out that when Parkinsons is part of the equation, there is never a clear diagnosis, just more guesswork.
Lessons learned.
1. Cane assistance is a thing of the past. Walker only from now on.
2. My wife will have to slow down.
3. I must be more aware of any tell tale symptoms
4. Must check my bp on a regular basis, especially when going out.
5. Ask you all for any other suggestions.
Needless to say, my next step is to email the store thanking all of the attentive and caring staff. The store referred to is the Joannes Fabric Shop on route 19 in New Port Richie. Florida.
the kind lady preferred to not be identified, but was personally thanked at the time
many thanks to all from a grateful and humbled recipient of the kindness and goodness of the real America.

posted about 3 years ago
A MyParkinsonsTeam Member said:

Roy, glad you are home and doing better. Thank you for sharing your difficult experience, it is helpful.

posted about 3 years ago
A MyParkinsonsTeam Member said:

Do you check blood pressure at regular times. I was having dizziness, found out it more often than not was associated with mornings. After a night of not eating and then taking my meds which include sinamet,I was suffering the effects of low b.p. when you eat, blood flow is directed to your stomach to help digestion. Meds increase the effect. Solution......sit for 10 to 15 minutes after breakfast, or change the timing of your meds.
I take BP readings any time I feel a little off. Useful knowledge. Don't leave it to doc. He's not always there.

posted over 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member large
Am adding you to my team.Take Care God Bless Hugs 😃😃😃😃

posted about 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Large
If we don't learn from the experiences then we will repeat the same mistakes as will the ones coming after us.
Personally I wouldn't care for that very much.Life is hard enough as it is without us doing repeats 24 / 7.
Take Care God Bless Hugs 😃😃😃😃

posted about 3 years ago
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