This is a video of me having the worst dystonia attack I've ever had filmed live in London at the end of the Exenatide trial. Since successful deep brain stimulation surgery this is now not an issue anymore......
Thanks Larry but weep no more since my dbs surgery the distonia beast has been well and truly caged and that bitch is staying caged march 7th 2017 is my second birthday I was reborn that day as my dbs has got the distonia completely under control I have not felt her ice cold hands since. I promise you I am doing well.
also at UW Hospital in Madison, WI is Dr. Dent----she is terrific and she is a movement disorder specialist, a part of neurology.....
I will make sure I send you positive thoughts KR
Best wishes and good luck to you xx
That is one of the symptoms targeted with me no trouble with that at all now. Which hospital is preforming the surgery for you?
I'm happy for you and I hope you feel this way for years. Can I ask how about the pain and stiffness? I can hardly get out of bed in the morning. My knees and hips hurt along with my feet. I am having DBS in less then a month. I hope mine works as well as yours.