For those of you who may want to try NUPLAZID for hallucinations, but. Find it too costly, contact: PAN, PATIENT ACCESS NETWORK. THEY HAVE AN 800 NUMBER AND YOU CAN APPLY OVER THE PHONE AND BE TOLD RIGHT AWAY. If you qualify. My husband qualified for a grant immediately and now he pays zero for the drug. I didn't think we would qualify because we have four retirement checks but to my surprise, we did. I have told a number of people about this Foundation---it's not a government program,-and everyone I have told about it has qualified. We couldn't use the drug
without PAN.
It works wonderfully for him and has stopped his delusions and hallucinations. We will reapply in February and hopefully he will qualify again since there's little change in income. He is also recently started Apokyn and they will cover that also. I urge you to give PAN a call. 866-316--7263-Patient Access. Network Foundation. I wish you all a better New Year and a happy holiday season.

Dear Folks, I am so sorry that Melatonin did not work for you.! My first Neurologist was emphatic about taking Melatonin because it was a natural substance that is already in our bodies that helps us to sleep. So, he just added a little more before I went to bed. if there is a major problem, then call your PD right away. If something he suggests and it doesn't work, stand up to him and tell him, he is not God, he is a human being like the rest of us and possibly made a mistake in your case. So, please persist and find the answer. Personally, I google all my med.s and other information I want to know. i guess I am obsessive until I find an answer. We should do what we can to make PD tolerable. Oh yes, Contact the National Parkinson's Foundation, in Silver, Spring Maryland. The consultants will help you and send free literature along with an alert bracelet that you wear 24 hr.s 7 days a week to help you in case there is a crisis or emergency. All the best ! Hugs, Pam

@A MyParkinsonsTeam Member How is your blood pressure? Do you know that anatomically, when pushing to try and produce a "stool" it causes the blood pressure to drop significantly. It sounds like when you got up, your blood pressure had dropped severely, and you were about to pass out. People in general think it is the opposite. They have a feeling their head is about to explode so the BP must have gone up while eliminating a bowl movement. You should tell your doctor how severely you feel after pushing to eliminate a bowl movement. There may be something you can do to avoid such a severe drop next time. Passing out has its own dangers, hitting head, breaking limbs etc.

Mentioned Users

A MyParki...

I find that when I get up in the 11:00 -- 3:00 A.M. time frame a small bowl of cereal and milk will help me to get back to sleep.

Don't be embarrass about it Lorraine I had to put rails on my bed some time back and i sleep alone to keep from hurting my wife. i have had some wild nights and even wilder dreams.We just have to do what is best and if it doesn't get any worse then a set of bed rails we have won the game.

Jim