I honestly believe the doctors etc could learn more about our condition if they took the time to read our posts on this site. I was talking to the Parkie nurse last week, a very lovely lady and a damn good nurse, and I was telling her that some mornings my nose runs and if I am not careful, I dribble, just like my Parkie friend Stewart. He is a team member, Aliveo. And she was unaware that this was because of our condition. So I suggested to her to have a look at the site and then she can read… read more
As each of us have our own body chemistry, I think we have to better monitor what the doctor is prescribing and find a dosage that is right for us. Doctors no longer have the luxury of spending time with their patients as a result you are treated like the average patient and prescribe based upon pharmaceutical guidelines. We all know there is nothing average about PD.
I agree totally,my Parkinson’s nurse knows less than my wife regarding my illness,they didn’t even know how my new medication works,it’s called duopola,it’s put into my body via a tube into stomach,it’s not a wonder drug,but it does help with my shaking and freezing but it doesn’t last all the time,I still freeze when someone walks in front of me or the phone rings or someone knocks at the front door,I still have falls,but it’s still the best medication for me,
My nose drips like a faucet on both sides and have a lot of congestion at night. I had these issues even before I was diagnosed with Parkinson's over 10 yrs ago. It just wares me out wiping my nose all time. Of course my primary care Dr contributes it to my allergies. My neurologist acknowledges it is probably is a combination of the PD and allergies.
I have nose dribble and mouth as well I now take atropt eye drops placed under the tongue it works
Hi, without going through my whole history...... I AGREE WHOLEHEARTEDLY!!!! I have "symptoms" that am sure are PD related, but I don't get a definite "yes or no" I get, I don't think it's one of the usual examples or a typical symptom of PD.
In fact my hairdresser whose father has had pd for many years, told me ( kindly and with a little hesitation) that she thought I might have PD, well before I was given a second assessment by the same neurologist ( 2013 1st assessment --- discharged advised no Pd. 2016 2nd assessment -- you have full Parkinsons and thought you had it, when saw you in 2013"!!!!!) But we must keep positive and strong both in mind and body. Lots love and hugs xxxxx 💗 💗