Hallucinations when waking up. On no medicine. Is this normal for PD?

Hallucinations when waking up. On no medicine. Is this normal for PD?

A MyParkinsonsTeam Member said:

Have to remember, by definition, hallucinations are false sensory input, as opposed to delusions which are fixed false beliefs.
I have both visual and auditory hallucinations, have had for 4-5 years. I key off my dog and wife (and other people if they're around)--if they are not reacting I know it's me. I find my visual hallucinations amusing; nothing really scary or 'ghostly'; because I know they're not real. Usually a small animal or shadow moving rapidly, or a person. Once I had Tweedle Dum (or Dee, not sure which) from Disneys Alice in Wonderland sitting on my leg, full size, looking at me and grinning; I swatted him with my arm and he disappeared. Another was a boy, about 12 years old, dressed like Colonel Sanders, standing against a wall. He was very solid and didn't move. Problem was there was another wall between me and him My first real experience was the gradual materialization over several days of a Revolutionary War soldier, green pants, blue coat, ruffled shirt, white wig and stockings, no face or feet. Last time I saw him he was standing behind my doctor who was sitting at his desk. I've also had people looking over my shoulder or walk by when Im doing something.
Auditory are a nuisance, especially when they wake me up in the middle of the night. Usually like talk radio, with one man interviewing another man or woman, sometimes all three talking, once in awhile they argue and sometimes there is also music. Sometimes, however, there are whispers or sounds in my ear (no command prompts) while Im doing something. As I said, a nuisance.
At times I have very vivid dreams while in REM sleep. Sometimes I can tell myself, as though an observer, its a dream and it stops. Sometimes that doesn't work, I wake up and the dream continues for a few moments after I wake up. That can get scary, because I dont know what is real and what isn't. So far I haven't had to fight any monsters after waking, but who knows; it may be just a matter of time.

posted over 1 year ago
A MyParkinsonsTeam Member said:

It's hard to say if the meds make the hallucinations appear or if is the disease or if the two working together cause the problem. I have had 7 major operations and don't think the meds cause me any problems. That being said if, I take a small nap durning the day my wife says that I act strange for a few minutes. Is this caused by the meds or the disease ...don't think anyone really knows. Thats my opinion......PS if you can make your brain realize what your seeing is a hallucination hopefully you can rid yourself of any problems.

posted 12 months ago
A MyParkinsonsTeam Member said:

Good on you Bernie. Keep strong. My exercise routine seems to be helping my balance issues. Deep squats and standing on my dragging leg in yoga pose trying to extend the amount of time I can keep balance on one leg without having to hold on to something for support.

posted 7 months ago
A MyParkinsonsTeam Member said:

Hi Sally, l have been diagnosed with pd since 2002, at first l did not believe it, took about twelve months when l went to a movement disorder clinic which finally sorted me out, l did have hallucinations, which was fixed by medications l had severe movement disorder which was fixed by having the dbs operation, l have had plenty of other side effects, but how l was diagnosed l had the symptoms of dragging my right leg swinging my left arm, and horrible writing goes very small and l can not understand what l have written. I have got used to the medication l am taking and are positive about my future. The deep brain stimulation operation was a god send for me it stopped my involuntary movements and made my sleeping a lot better no movements in bed.
I swear by keeping fit by walking and inside exercises, being positive because since 2002, l have had three big cancers which required three major operations with chemotherapeutic.
That’s enough about my battles hugs from
Bernie of Morwell Australia

posted 7 months ago
A MyParkinsonsTeam Member said:

completely true and I talk about this for personal experience. I was going to sleep in my bedroom, when all of a sudden I started to hear soft voices talking to one another in my wife's bedroom.
So immediately I went upstairs and put my ears onto the wall and still could hear the secret conversation so I could not resist more and knock the door,while at the same time in a desperate tone I asked my wife to open the door because I knew there was a man in the bedroom. She was afraid that I was faking the situation to gain access to her bedroom.
So she picked up her cellphone and called to one of our neighbors who showed up almost intermediately
This neighbor stepped into the bedroom and told me that anybody was in the bedroom.

So because of this incident I had to leave the house and seek refuge in a friend's house in which I was for 7 days.
Now, I am back home but the switch in medication has demonstrated that Mirapex was the culprit for the hallucinations. Since then I do not hear anything and I feel more calm .


posted 11 months ago
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