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Hallucinations When Waking Up. On No Medicine. Is This Normal For PD?

Hallucinations When Waking Up. On No Medicine. Is This Normal For PD?

A MyParkinsonsTeam Member said:

Have to remember, by definition, hallucinations are false sensory input, as opposed to delusions which are fixed false beliefs.
I have both visual and auditory hallucinations, have had for 4-5 years. I key off my dog and wife (and other people if they're around)--if they are not reacting I know it's me. I find my visual hallucinations amusing; nothing really scary or 'ghostly'; because I know they're not real. Usually a small animal or shadow moving rapidly, or a person. Once I had Tweedle Dum (or Dee, not sure which) from Disneys Alice in Wonderland sitting on my leg, full size, looking at me and grinning; I swatted him with my arm and he disappeared. Another was a boy, about 12 years old, dressed like Colonel Sanders, standing against a wall. He was very solid and didn't move. Problem was there was another wall between me and him My first real experience was the gradual materialization over several days of a Revolutionary War soldier, green pants, blue coat, ruffled shirt, white wig and stockings, no face or feet. Last time I saw him he was standing behind my doctor who was sitting at his desk. I've also had people looking over my shoulder or walk by when Im doing something.
Auditory are a nuisance, especially when they wake me up in the middle of the night. Usually like talk radio, with one man interviewing another man or woman, sometimes all three talking, once in awhile they argue and sometimes there is also music. Sometimes, however, there are whispers or sounds in my ear (no command prompts) while Im doing something. As I said, a nuisance.
At times I have very vivid dreams while in REM sleep. Sometimes I can tell myself, as though an observer, its a dream and it stops. Sometimes that doesn't work, I wake up and the dream continues for a few moments after I wake up. That can get scary, because I dont know what is real and what isn't. So far I haven't had to fight any monsters after waking, but who knows; it may be just a matter of time.

posted over 2 years ago
A MyParkinsonsTeam Member said:

It's hard to say if the meds make the hallucinations appear or if is the disease or if the two working together cause the problem. I have had 7 major operations and don't think the meds cause me any problems. That being said if, I take a small nap durning the day my wife says that I act strange for a few minutes. Is this caused by the meds or the disease ...don't think anyone really knows. Thats my opinion......PS if you can make your brain realize what your seeing is a hallucination hopefully you can rid yourself of any problems.

posted over 1 year ago
A MyParkinsonsTeam Member said:

Yes the night dreams are the worse experience l have had, l got them when l was partially waking up, acting out my dreams which became dangerous for my wife, so much that she had to move and sleep in our spare room, but she could yell at me, calling my name out which would completely wake me up and l would stop what ever l was doing, on changing my medication has solved that problem but it started back again different neoulogist this time and l had to about demand he change my medication, stopped using amantadine and clonazepam, has worked for me. Hope this can help anyone else, speak up to your neurologist, all the best from Bernie of Australia.

posted 10 months ago
A MyParkinsonsTeam Member said:

Good on you Bernie. Keep strong. My exercise routine seems to be helping my balance issues. Deep squats and standing on my dragging leg in yoga pose trying to extend the amount of time I can keep balance on one leg without having to hold on to something for support.

posted about 1 year ago
A MyParkinsonsTeam Member said:

Hi folks. I was diagnosed July, 2006. Had one heck of a time with just about all of the different varieties of Carbidopa/Levodopa and patches.

The "best" medicine for me has been Rytary.

One bothersome side-effect of the medicine has been the almost constant facial dyskinesia and associated "hyperventilation-like" breathing. Modifying how often I take my Rytary during the day seems to temper the effects.

But, at least I made it to 72-years old and am still kicking.

posted 10 months ago
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