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A MyParkinsonsTeam Member asked a question 💭
Perth, AU

As we Parkies know there are other horrible things we have to put up with eg. grunting, runny nose in the morning, to much saliva, constipation, bladder problems including incontinence, leaning to one side, sciatica, I know there are more. Who can add to the list?

November 26, 2017
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A MyParkinsonsTeam Member

Now let's add to this list the things we are doing that help with each symptom, ie turning a grunt into a clearing my throat or just saying "excuse me!", using sublingual homeopathic allergy remedies to get rid of that runny nose in the morning, (I have dry mouth rather than too much saliva - I try to drink more water, which helps a lot!), lots of fruits, veggies & whole grains help with my constipation, especially hot prune juice (50/50 with coffee or hot water), bladder problems including incontinence (love those incontinence pads!) - not postponing trips to the restroom, leaning to one side - I have fought this long enough now, just straightening myself up, that it has quit, sciatica - exercise & stretches are great for this - a simple one that helps me & gets rid of the pain immediately is to lie on a carpet or rug on my back with my legs up (90 degrees), feet flat, for 1 minute - deep breathing & retucking my hips out to straighten the small of my back as needed; dizziness - head down for a few minutes - get up slowly, balance - practice & physical therapy, facial freezing - I make faces at myself in the mirror (practice your best smile)or move to stretch my jaw & eyelids every direction (not pulling on them with my hands, moving them by opening my mouth & stretching the jaw down & left, down & right. raising my eyebrows - opening my eyes wide, winking), mental health - laughter, planning, interaction with people, neuromuscular pain & restless leg - exercise, also enough potassium in the diet. Sleep disorders - it helps me to put on a movie or read myself to sleep. (What am I saying, it is 4:21 AM & I have been up since 2:00 AM). Vivid dreams or nightmares - it helps to describe them to someone or write them down. Hallucinations - talk to yourself &/or others about what is real or not real. Etc. What helps YOU ?

November 27, 2017
A MyParkinsonsTeam Member

I mainly use the Stretch Out Strap which I learned of in physical therapy. I bought in on Amazon. The exercises I do for RLS are:

1. Calf Stretch (I use slant box for this)
2. Quadricep and Hip Flexor Stretch
3. Hamstring Stretch
4. Outer Thigh Stretch
5. Inner Thigh Stretch
6. Gluteus Maximus Stretch
7. Hip Rotator Inner
8. Hip Rotator Outer

I attached image that shows stretching exercises. Feel free to reach out if you have questions.

December 1, 2017 (edited)
A MyParkinsonsTeam Member

And the list goes on and on and our doctors, specialists and PD nurses don't know about these other things we have to put up with every day. I just thought of some more, restless leg syndrome. nightmares, drooling while asleep and hallucinations

November 26, 2017
A MyParkinsonsTeam Member

Sure thing. I'll send more details shortly

November 30, 2017
A MyParkinsonsTeam Member

Mental health issue (anxiety, depression)
Neuromuscular pain
Sleep disorders

November 26, 2017

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