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I Am The Spouse Need Help From Other Care Givers

I Am The Spouse Need Help From Other Care Givers

I just need to know how to best help my spouse, he can barely, walk, has tremors, either sleeps all the time or does not sleep at night up and down toss and turn can hardly get of bed or get up from his chair. does not want to eat. thought processes are not good. Does not communicate. he has fallen several times. we live in a fifth wheel so he does not have far to go for bathroom had bladder issures. We have not had our appt. yet with the neurologist yet he is… read more

A MyParkinsonsTeam Member said:

Medication is very important, the early days when the medication is being introduced is very difficult.
I was 44 when diagnosed and it has taken 4years to get back to some sort of normality.
The neurologist will be able to answer all your questions, support groups are very worthwhile, and this site gives a good amount of advise.

Most people I have spoken to suffer from the complications that you have listed above. Personally I think it is harder for the carers than those suffering from Parkinson’s.

Stay strong, be positive, encourage exercise, forgive his mood swings.
Above all don’t loose the person you are, try and make time for yourself.

Best wishes

Mark
Guernsey

posted over 2 years ago
A MyParkinsonsTeam Member said:

He may be taking wrong dose of meds......that is one thing that is so precise in controlling PD. See nuero or movement socialist asap

posted over 2 years ago
A MyParkinsonsTeam Member said:

Mary Ann Tatman,welcome to our support group.We are here for each other,either as Patient or caregiver. I am a caregiver for my husband. It sounds as though your husband needs a higher dose. You can ask anything here and we will try to help.You may need to get help fromother sources also.Warm thoughts and hugs.💟

posted over 2 years ago
A MyParkinsonsTeam Member said:

Do you go to a support group? Often this is a place for care givers to connect, as well as for PWP (People with Parkinsons). Here's a list of some in Missouri: https://www.apdaparkinson.org/community/st-loui...

I had to wait 3 months to see a neurologist. It seems to take a long time for the first appointment, but then (if they're good) you don't have to wait so long, you can phone... Ask your Primary Care Dr. if s/he knows of any resources.

posted over 2 years ago
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