Living with Parkinson's disease can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than you did before you developed Parkinson's. Do you have a tough time being direct with others about how you feel? It's not unusual to feel awkward or self-centered when turning down a request or an invitation. You may feel at the mercy of the other person's need.

Using "I" statements can help put you back in the driver's seat of the situation. An "I" statement directly communicates your feelings and sets a clear boundary, allowing you to focus on treating your Parkinson's and managing Parkinsonism symptoms like tremors or stiffness.
For instance:

I don't feel like going.
I'd rather do something else instead.
I can't do it this week.
Whenever I attend that event, it takes me days to recover.

At first, you may feel vulnerable about using direct "I" statements when saying no. Your true feelings are exposed, and you may be judged for using Parkinson's as an excuse. "I" statements can also be freeing! You don't need to pretend or tell a white lie. It's ok to communicate directly about what you need.

Using an "I" statement is a way of taking responsibility for your feelings. You are not blaming or accusing the other person. You are being honest about your needs and making sure they are recognized.

Members of MyParkinsonsTeam shared some of their experiences with communicating directly:

"I am always pretending to be the same happy person."

"I haven't had time off from care-taking in about two years."

"Now my husband understands what I'm saying when I tell him and how serious it is."

Have you used "I" statements to set boundaries? How did it feel?
Share your stories about direct communication in the comments below or on MyParkinsonsTeam.