Connect with others who understand.

sign up log in
About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Percent Do You Feel You've Regained Of Your Pre PD Condition With Your Chosen Treatment?

What Percent Do You Feel You've Regained Of Your Pre PD Condition With Your Chosen Treatment?

Just wondering how people view their treatment success with various approaches?

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Just the fact that you are doing so well on the Hinz protocol, along with a few others that I have read about, gives me the encouragement to go ahead with a knowledgeable Dr that practices this protocol. My original plan was to start sometime in late April or early May when I don’t have so much going on. In the mean time I just wanted to test out the Mucuna to see how I would handle it......not good. I hope you are right about the cysreplete & neuroreplete helping with the nausea because that would make things MUCH better. After reading the stories on the amino acid blog (which there was a link to on one of your posts), I got the impression that the majority of people working with Dr. Oler had problems with nausea at one point or another while on this protocol. Hopefully, I will have a good story to tell in the near future!😊

edited, originally posted over 2 years ago
A MyParkinsonsTeam Member said:

Tolerable. I have had PD 12 years. Last year I was in a drug study for the FDA for 1 year It was amazing. Problem was that it was manufactured in Japan. My Doctor thought and hoped it would be released this year. I hope so

posted over 2 years ago
A MyParkinsonsTeam Member said:

Well PeteandKim I’m trying to remember what I was talking about. I believe maybe the drug study that I was part of last year. The drug was nameless. All we had was a long number on the bottle. The drug itself was “amazing “ by the way I regained my walk and balance. It took maybe a week before you could tell the difference but it was like someone threw a switch. But you could also tell when it was wearing off too. Some people found out more information about it then purchased it in Japan where it is manufactured. I didn’t Perdue it that far. I heard that it is very expensive I hope that helps. I just wish that the FDA would stop playing with our lives. $$$$$. .

posted about 2 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member I don't think many people try it first as Drs never recommend it as they've never heard of it ? I think it's easier as a first attempt but I've seen some videos of people that they brought back from a very compromised state. Probably wasn't easy but as a last ditch effort,I think you'll put up with anything . Best wishes.

posted over 2 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Wish I could offer more than hope. Hinz has a spacific plan for dealing w nausea but I never used it. I was under the impression it's more commonly needed when switching treatment approaches. Hinz has a couple pill types , cysreplete n neuroreplete that are essential to the program. It's the only part that's patented I believe. Those pill free weekends are great but it was awhile before I felt better on Sunday than on Fridays so I always stepped up, even though I wasn't crazy about the added volume. It would be good to try the actual program when you can because close may not be good enough. I tried experimenting as have others including Dr Hinzs but I believe they have a specific regimen that works now. Hope it can work out for you too.

edited, originally posted over 2 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in