Just wondering how people view their treatment success with various approaches?
@A MyParkinsonsTeam Member Just the fact that you are doing so well on the Hinz protocol, along with a few others that I have read about, gives me the encouragement to go ahead with a knowledgeable Dr that practices this protocol. My original plan was to start sometime in late April or early May when I don’t have so much going on. In the mean time I just wanted to test out the Mucuna to see how I would handle it......not good. I hope you are right about the cysreplete & neuroreplete helping with the nausea because that would make things MUCH better. After reading the stories on the amino acid blog (which there was a link to on one of your posts), I got the impression that the majority of people working with Dr. Oler had problems with nausea at one point or another while on this protocol. Hopefully, I will have a good story to tell in the near future!😊
Tolerable. I have had PD 12 years. Last year I was in a drug study for the FDA for 1 year It was amazing. Problem was that it was manufactured in Japan. My Doctor thought and hoped it would be released this year. I hope so
Well PeteandKim I’m trying to remember what I was talking about. I believe maybe the drug study that I was part of last year. The drug was nameless. All we had was a long number on the bottle. The drug itself was “amazing “ by the way I regained my walk and balance. It took maybe a week before you could tell the difference but it was like someone threw a switch. But you could also tell when it was wearing off too. Some people found out more information about it then purchased it in Japan where it is manufactured. I didn’t Perdue it that far. I heard that it is very expensive I hope that helps. I just wish that the FDA would stop playing with our lives. $$$$$. .
@A MyParkinsonsTeam Member I don't think many people try it first as Drs never recommend it as they've never heard of it ? I think it's easier as a first attempt but I've seen some videos of people that they brought back from a very compromised state. Probably wasn't easy but as a last ditch effort,I think you'll put up with anything . Best wishes.
@A MyParkinsonsTeam Member Wish I could offer more than hope. Hinz has a spacific plan for dealing w nausea but I never used it. I was under the impression it's more commonly needed when switching treatment approaches. Hinz has a couple pill types , cysreplete n neuroreplete that are essential to the program. It's the only part that's patented I believe. Those pill free weekends are great but it was awhile before I felt better on Sunday than on Fridays so I always stepped up, even though I wasn't crazy about the added volume. It would be good to try the actual program when you can because close may not be good enough. I tried experimenting as have others including Dr Hinzs but I believe they have a specific regimen that works now. Hope it can work out for you too.