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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Husband Has Had PD For 18 Years, He Is Now 62. His Hamstrings Get So Tight, He Cannot Move. Anyone Experience Severe Hamstring Pain?

A MyParkinsonsTeam Member asked a question 💭
Mays Landing, NJ

He is getting Physical Therapy on a regular basis but his hamstrings often still feel like they are on fire. We know it is from his bent over posture and the progression of the disease. He is stiff, rigid, slow and often freezes and needs wheelchair. I saw one person on this site tried Botox. Anyone else have really bad hamstring pain, like 10 on the scale of 1-10?? Any relief from acupuncture or anything else?

March 28, 2018
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A MyParkinsonsTeam Member

Hello am carer to Moni my wife she has that bent over posture all time she likes her bed more but is still lays in a bent form making it hard for me to help sit her up to take meds.. Luckyly we have a profiling bed that helps me sit her up by lifting top half of bed up.. She is always in a stiff freezing position making it hard to roll her etc... any one out there got same problem?... Moni is 75 I like her first thing in morning as she is her old self no freeze ups or bendy position!!!! Half way thru day Moni starts to freeze up ......,

March 28, 2018
A MyParkinsonsTeam Member

I’ve only been diagnosed with PD for 6 months it so but I get the hamstring pain. At night it wakes me from a deep sleep and boy does it ever hurt. What’s next?

March 30, 2018
A MyParkinsonsTeam Member

Here are some things to think about. Pain can be caused by a number of factors associated with Parkinson’s, including:
Muscle stiffness
Dyskinesia (involuntary muscle movements)
Constipation
Dystonia (prolonged muscle contractions)
Central pain (pain caused by processing problems in the central nervous system)
Neuropathy (nerve damage)
It’s important to understand the different types of pain associated with Parkinson’s disease, as well as what can be done for pain management. As always, talk to your health care provider or neurologist about the best ways to manage any pain you experience with Parkinson’s.
What Kinds of Pain Are Linked to Parkinson’s Disease?
MyParkinsonsTeam members have described the pain they’ve experienced with Parkinson’s in a variety of ways. This pain can be chronic pain (persistent and ongoing pain) or acute pain (pain that comes and goes).
Sciatic Pain
The sciatic nerve starts in the lower back, runs through the buttocks, and continues down the leg. Many members describe experiencing pain associated with the sciatic nerve as a result of their Parkinson’s diagnosis.
The medical definition of sarcopenia is the gradual loss of muscle mass, strength and function. The condition commonly affects the elderly population and is thought to occur due to aging. Sarcopenia can greatly impact your quality of life by reducing your ability to perform daily tasks. It can lead to the loss of your independence and the need for long-term care.
Sarcopenia affects your musculoskeletal system and is a major factor in increased frailty, falls and fractures. These conditions can lead to hospitalizations and surgeries, which increase the risk of complications including death.
Sarcopenia can also affect people with a high body mass index (BMI), in a condition called sarcopenic obesity. People with obesity and sarcopenia have a greater risk for complications than with obesity or sarcopenia alone.
Who does sarcopenia affect?
Sarcopenia most commonly affects people ages 60 and older. The rates increase with age. The disease affects both sexes equally. Studies on affected ethnicities are inconsistent. The rates of the condition increase in people with chronic disease.
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I could cry at times, with my thigh and calf pain, with extreme contractions.
Here's what helps me:
Light massage - not deep tissue. I use Penetrex. It's available at Walmart and Amazon. In addition, I use prescription Lidocaine patches. The size I have provides good coverage.
I eat a good deal of protein. I like Fairlife protein shakes.
I have had varying degrees of success with acupuncture. Medicare will pay for acupuncture performed by an MD.
Good luck - I hope some of this helps.

August 20
A MyParkinsonsTeam Member

Sorry I'm so late in replying. I have the same thing. They get so tight and
painful. Really painful 😒! I've had Parkinson's around the same time
frame. It also happens to my calf muscles. My diagnosis was at about 13
years ago.
I have many symptoms that you have. I'd like to send you more info
tomorrow; that would give me a little bit of time to put some things
together for you.

August 4
A MyParkinsonsTeam Member

Hi, I had severe pains in my thighs and calves and was diagnosed with spinal stenosis as well as Parkinson's. I was put on Pregabilin for the stenosis but I worked with a spinal therapist who gave me a few simple exercises and I am now pain free and medication free as regards the stenosis. I still limp caused by the Parkinson's and an arthritic hip. Hope this helps.

March 29, 2018

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