Anyone Taking Rytary...slow Release Carbidopa Levodopa? | MyParkinsonsTeam

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Anyone Taking Rytary...slow Release Carbidopa Levodopa?
A MyParkinsonsTeam Member asked a question 💭

My husband takes PD meds 3 X a day, but struggles with symptoms more mid day & was thinking of just using the Rytary for mid day dose. Neurologist said Rytary had more consistent results than sinemet CR.

posted April 2, 2018
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A MyParkinsonsTeam Member

Hi Ruth & Judi I have been taking Rytary for about a yeat. It work the best for me, Over the years I have tried a lot. I was taking a combination of Stalevo & Sinemet for years. I was taking these every 2 to3 hours both 25/100mg. The Rytary woks faster & I take it every 3 to 3 1/2 - some times 4 hours. I continue top take Amantadin for the dyskinesia three times a day.

posted April 13, 2018
A MyParkinsonsTeam Member

I take 3 capsules of Rytary 3 times a day. It was like a miracle drug for me. I don't think I get any side effects from the Rytary. I barely had tremors but I definitely shuffled. My biggest problem is my orthostatic hypotension which limits my life. It is somewhat controlled with Upsher Smith Midodrin. Sometimes I feel just awful. I was worn out just getting from the car to an MD appointment. Turns out my BP standing was 44/38. No wonder. I'm just lucky I don't pass out. Anyone else have low BP problems.

posted April 4, 2018
A MyParkinsonsTeam Member

My husband also takes Rytary. He started at 3 pills 3 x's a day, at 6 hr intervals, but after a year, his off time was occurring earlier, so the neurologist had him go up to 3 pills 4 x a day at 4 hr intervals. He also takes seroquel for anxiety and worry issues but I am now concerned they are adding to side effects - like a quicker temper. We'll see.

posted April 18, 2018
A MyParkinsonsTeam Member

Rytary has been a godsend for me. I've been on it for over a year and have had Parkinson's for 12 years. They have tried just about everything on me at John Hopkins this is truly a miracle drug. No Tremors at all when I'm on and absolutely no dyskinesias which I had with all of the meds before. Hail to Rytary and the doctors that prescribe it.o

posted April 12, 2018
A MyParkinsonsTeam Member

Hi Thia,, sorry to hear of your ongoing issues with by OUR health. I am also undergoing come medication issues and I wanted to ask you how the Motor in is working out for you.. I have been on Rytrary capsules for the past 6 months.. The problems I am now experiencing are associated with balance issues sand soft voice issues.. OOO travelled to Florida State movement and development center last week and met with some of their medical experts who are well versed in Parkinson's disease issues.. They were kind of surprised that my condition had changed so fast and they want me to come back for an MRI in June to meet with some of their staff members and have them take a look at me and make some changes to my current medications.. They wanted to see me again over the next few days but I am now back in Michigan for the next six months and I couldn't get away until the second week in JUNE.. They have suggested harbinger off the Rytary meds sand switch back to the Sinament tablets. Asap..good luck with your health issues.. take care Rick

posted April 4, 2018

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