Just after opinions please. Consultant wants to see me again in 4 months as meds not working as well as he thought they would and wants to give them more time to work before reviewing dose. I asked about a brain scan and he said I could have one if I wanted but that it wouldn’t show anything. I know that PD doesn’t show up but am I being too anxious to want to rule everything else out. I’m in early stages with a tremor in my left hand and a weak left leg. I’m seeing the specialist nurse for the… read more
Your consultant may be right as it can take many months to get PD medications properly balanced. I have been adjusting mine since I was diagnosed several years ago. For me, a lot of trial and error, but well worth it.
Regarding the scans, I've attached a link to a site that will provide you with some very interesting information about DaTscans. As for an MRI, I had one completed, but only to rule out other problems, and not to confirm a PD diagnosis. Fortunately, the more progressive medical centers have started using MRI to diagnose and chart the progression of this disease. With either of these scans, it's important to have them interpreted by someone with considerable experience with these tests and how they relate to Parkinson's.
Trust me, things will get better. You're in the early stage where much happens in a short period of time. It isn't easy, but in time you will adjust to all of the changes. You'll feel much better if you start learning all you can about this illness. Don't do what I did, and get discouraged when I read some of the symptoms because it prevented me from acquiring the knowledge that would have been a big help early on. The second link will take you ten sites plus this one to get you started.
PD is an odd disease. You can feel great and two hours later feel lousy. Try doing one thing a day. One usually leads to two, then three, or more. Even if you just do one thing, the sense of accomplishment is wonderful.
http://www.parkinson.org/blog/whats-hot/update-...
https://parkinsonsnewstoday.com/2017/10/03/orga...
See my story, B-1 helped tremendously with my symptoms, but everyone's different. I only take magnesium and B-1. I found I could get brain fog from too many supplements at once. My profile page has a lot more information of what I found that works for me.
I had a CT scan of the brain to rule out other possible causes of my symptoms. I was first diagnosed with PD in January 2014 and put on Sinemet. I went back a few months later and the Dr said it wasn't PD because my response to the Sinemet wasn't immediate. So I stopped the Sinemet and my symptoms got progressively worse. I got a second opinion in December 2014 and this time my response to the medication was more obvious. I relocated to another city and my new Dr confirmed my diagnoses as well as a movement disorders specialist. This disease can be a challenge to diagnose so I would get as many tests as reasonable to rule out any other conditions.
Does the vit B1 help with symptoms? Do you take any other supplements or PD medication?
My wife diagnosed last year, not on any medication it is taking a lot of supplements. We live in U.K.
Many Thanks
John x
You're early on like me I use high-dose vitamin B1. It's very popular in Italy. More information on my profile page.