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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 29, 2018
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A MyParkinsonsTeam Member

I was diagnosed 20 years ago and have great doctors. Whenever I've experienced a change in symptoms, my neurologist and internist have always been able to offer a solution, with one exception . . . I realized several years ago that when I can taste, I cannot smell, and when I can smell, I cannot taste. The doctor told me that was one issue there was no remedy for. I've found that there seems to be a short period of time when I first awaken in the morning that I have a slight sense of taste, and, therefore, I make my favorite Haagen-Daz Chocolate Dark Chocolate Ice Cream Bars part of my breakfast. I love good food and think my brain helps me to remember how the foods I really enjoyed taste and so I eat them but rarely have seconds. I've lost a few pounds, but that was not a bad thing!

June 23, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member I don't think it's the Sinimet that destroys appetite. I don't take Sinimet (or any levadopa) but have lost some of my ability to smell so food isn't as appealing.

May 30, 2018
A MyParkinsonsTeam Member

I have lost my sense of taste and smell. I can't say it is related to my meds. I was taking pramapexole a few years before carbodopa/levadopa was added last year and it does seem that it might have began then. Will have to discuss with neurologist.

May 30, 2018
A MyParkinsonsTeam Member

Thank you. Some days I think I am totally losing it.

May 30, 2018
A MyParkinsonsTeam Member

Sometimes I can barely taste food at all. I also have trouble chewing and swallowing after my Botox injections. I keep losing weight. Sinimet also destroys my appetite. Food does not appeal to me very often.

May 30, 2018

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