Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Ewing, NJ

I got my PD Dx via the results of a DatScan in June. I had previously been diagnosed with Orthostatic Tremor, which I indeed have as far as symptoms go. I joined this group and accumulated friends who I was conversing with on myriads of topics of interest. Somehow on 9/17/18 I stooped receiving any communications from the site. I asked the mods if I was somehow blocked out for reasons totally unknown to me. Their response was that I should look in my spam folder and see if emails from the… read more

October 6, 2018
 · 
Reactions
A MyParkinsonsTeam Member

I have discovered that there is not a one to one correlation between the email notifications and the post on MPT, either in quantity or time - I have never been bothered by the exact problem you are encountering, though - you might want to start from scratch again with a new moniker/password etc. I know of at least once this was done by a member of the MPT gang.

October 6, 2018
A MyParkinsonsTeam Member

my email acct was hacked and I had so much trouble logging on I lost all my contacts I had to change my email address and password and start new on all sites including this one they had to delete 3x my profile then finally it was fixed

October 7, 2018
A MyParkinsonsTeam Member

Sorry you have been having problems, it hasn`t happened to me yet! I have had problems with posts I write, sometimes they disappear but that could be me! lowreyjw suggests you set up again with new password which I think is good advice!

October 6, 2018
A MyParkinsonsTeam Member

No, that hasn't happened to me, although I do find it difficult to navigate through the various messages. I would just start again from where you are today. I am sure you are not the only one who has had such a problem, and your friends will forgive you, and be pleased to see you back online.

Yours
Audrey

October 6, 2018
A MyParkinsonsTeam Member

I recommend you find a random ten year-old kid. As for me, I still have a flip phone and I'm angling for a Jitterbug phone for Christmas.

October 8, 2018

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA

A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA

A MyParkinsonsTeam Member asked a question 💭