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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭

I think this site is amazing. All of us suffering & taking the time to add team members, like an answer or send a hug. It wouldn’t be a big deal if we all weren’t exhausted & felt great.

September 17
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Answer Summary

Members expressed deep gratitude for this community, with a recurring theme being that the site helps them feel less alone while navigating a... Read more

Members expressed deep gratitude for this community, with a recurring theme being that the site helps them feel less alone while navigating a disease that doctors often explain too little about. Several members shared that they rely on the group for information and emotional support, learning things about Parkinson's they never heard from their medical teams, and one member beautifully suggested creating a skills exchange where members could share talents like teaching languages or painting. A recurring theme was learning to accept hard days with grace, advocate for yourself with doctors, and lean on each other for the strength to keep going.

A MyParkinsonsTeam Member

The best thing that I learned from participating on this site is that I am not alone. There are so many things to learn about Parkinson's that, for me, took years. We never know if we're going to have a good day or an off day. There are no triggers for an off day. Some nice we sleep well and some we don't. I have learned over the years to take a day at a time and just adjust and adapt. The hardest thing for me has been telling people that I can't go out to lunch if we have something planned, or I can't have them over to my house because I am in bed. That is just something that I have learned to accept and give myself Grace. Take care of yourself. We are here for you.

September 18
A MyParkinsonsTeam Member

Hi I am Terry and 70. Just dienosed with Parkingson. I am grateful for this group I am learning so much and gaining from your shared experience. Thank you all

September 21
A MyParkinsonsTeam Member

As a caregiver I truly love the support in this group. I too have learned so much from the people with PD and their caregivers. I love how we can get answers to questions that we don't get elsewhere. Thank you everyone and take care.🩷

September 20
A MyParkinsonsTeam Member

I love this site it has helped me so much to learn and understand PD as my Dr never told me anything about it or what to expect I get lots of information and support here and the people on here are amazing

September 20
A MyParkinsonsTeam Member

CindyA2. I read an article about how people who were less social were more prone to Alzheimer's, which is a different type of dementia than Parkinson's, but still under the same medical category. There was opportunity to comment, so I asked if there were any similar studies concerning Parkinson's. If I receive a response, I will share it here.
I believe that the people on this site keep me from slipping into a dark mental state that I avoid more than COVID. I thank God for you all. I pray that each member of MyParkinsonsTeam has received the free gift of eternal life through Jesus Christ our Lord, so we can get to know each other without this dreadful disease or any ailments for ever!

September 20

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