I was diagnosed 11+ years ago and until March 2018 was able to walk "decently". Since then strong muscle contractions occur even to the point of extreme pain and total immobility. Part of the problem is no real pattern or common variables exist to help find a solution. Neurologist thinks I am a half bubble off center.
Good morning new member I totally understand where you are coming from I have suffered all of these simtoms I find in my case the best thing to do is to keep as busy as you can DONT sit down or stand in one place for too long and if you can do some exercise keep moving if and when you can that works for me anyway
This may seem bizarre, but have you tried pickle juice? My husband takes 2 ounces every evening for extremely painful muscle cramps . No prescribed meds or magnesium helped. Since he began taking the juice, he has had only rare mild cramps . It is available on Amazon.
Yes, provides substance for consideration. Some of your ideas are same/similar to techniques already used and helpful at times.
Where I keep looking for additional input:
quads, all gluts, lower back, hamstrings will literally contract and lock up (no consistent patterns evident that would help to determine when/what conditions, ...).
Thanks for the input, lot to process and integrate.
campbell, i hav had PD since 2005 and am blessed it's progress has been slow.i just joined becase of the same problem you experiencing. hip pain(right side pd has affected) saw orthopedic, twice both times xray of hip joint mostly normal, slight arthritis but not the trouble.went to see neuro.they added timed release carbidopa-lvodop at night said if problem persists see physical therapy. wife called orthopedic and advised her my pain inn my opinion was a:dystonia due to wearing off of meds, ie;i take meds work outside for 3-4 hours, pain gradually returns but due to stubbornness and ocd to work, I don't stop and take meds,keep working for 1-2 more hours then pain between groin and hip joint or may be pain behind hip towards butttox. so by then I knock off and take meds, eat a bite, lay down or propo up watch tv or try to read. muscle spasms like a charley horse of calf or foot affectsmy rt hip, terrible pain, soooo: nurse from Mri clinic to call tomorrow and schedule per the orthopdic dr 2 mri', one of lower lumbar sacral area and another of hip joint to rule in or out a physical nerve impingement such as a disk or nerve entrapment.
I have tried stopping at 3-3.5 hours taking additional meds(on 4 hour schedule) and painful muscle spasms are delayed.but even if take meds rigiht if I work from 8am-5 or 6 pm hip pain makes me stop , I told wife looked like 4 pm was knock off time or maybe 3.
when I get back home I run tub of hot water and soak for 20-30 min. also heating pad after bath helps on hip plus a salonpas or equivalent icy hot patch over area(capsiium active ingredient).I am a retired veterinarian so have a medical understanding of basic physiology.hence my recommendation to orthopedic to rule out disk diseass of lower back, rule out some bone disease but at the end of the day I suspect dystonia of pd I read about on the internet. anyone else experience similar pain I would love to read your story and what works for you. Campbell hope this dissertation has been helpful.
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