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Is Anyone Bothered Wth Low BP With Parkisons Or Meds? What Do You Do About It?
A MyParkinsonsTeam Member asked a question 💭
posted January 13, 2019
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A MyParkinsonsTeam Member

My husband's bp problems are severe - there's no reason to think your Mom will follow a similar course, but I'll share for any help it may be to you. Many years ago (before PD diagnosis) hubby started being "wobbly", lightheaded on the golf course. Dr. said to take salty treats along (potato chips, etc.). Got worse and finally he had to be helped to get home. Dr. said to stay home in air conditioning if temp was 90 degrees (We live in Phoenix). Shortly after that his neurologist (who was seeing him for an early Alzheimers diagnosis - after PET scan) diagnosed his Parkinsons (he had just begun resting tremor) About two weeks later he fell and had a subdural hematoma. His blood pressure can be orthostatic (when going to erect from sitting or lying). He gets up and passes out,
Blood pressure was once measured (in Drs. office at 57/43)

Because of the many falls (the hematoma required 21 days in Rehab) which continued over time and caused many EMT visits the Drs, said he could only be safe in a wheelchair and things have been much better since. He has passed out a couple of times in his chair (not orthostatic obviously). He has AFib, too.

To keep his bp up so that he does not pass out, his cardiologist prescribes Fludrocortisone (2 in the morning), midodrine (3 a day), mestinon (3 a day). This keeps him stable usually, but occasionally for no apparent reason it will drop and a few weeks ago we had to go to ER. BP was 55/50. This is all very extreme and Drs. say they cannot give any more meds. He also takes his Parkinsons meds of course.

He just turned 90 and is happy, pleasant to care for and loves his life.,,,

As I said, Jim's bp is severe. Has been tested over and over for orthostatic bp which is always positive. Dr's always caution me on how important it is that he NOT fall any more, Very important to guard against falls. Good Luck to you and your Mom, she's fortunate to have great family support,

posted January 20, 2019
A MyParkinsonsTeam Member

I have the same problem, I wish I had a good answer. My cardio wanted me to take more, but then my pulse goes up too high and I get all sweaty and jittery. Let me know if you solve it!

posted November 3, 2021
A MyParkinsonsTeam Member

How to change your Meditrine dosage. We haven't figured out what to do when it starts to wear off

posted November 1, 2021
A MyParkinsonsTeam Member

Very helpful and thanks. I have to take Midodrine too, and when it wears off, I get very dizzy. I haven’t passed out yet, but have had to put my head down to my knees to prevent that!

posted October 31, 2021
A MyParkinsonsTeam Member

Thank you for the information. My husband has gone through very similar situations with low blood pressure and the medications your husband takes. It's pretty scary when they fall. I see that if he takes the medication regularly, does not miss one that he is fine happy and almost his old self. If he misses one or takes it late it's entirely different situation. Thanks again for sharing this.

posted September 10, 2021

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