Adjusting to PD, whether you are the one with PD or the care giver, is a dramatic life changer. I love my husband and wouldn't dream of being anywhere else but at his side. Having said that, my husband is a different person, physically and mentally. We speak OPENLY about the changes. At first I got frustrated and snapped at him. Them I reminded myself that as hard as it is for me, it is much harder for him. We are a couple. What happens to him, happens to me and visa versa. He has PD, we have PD. Count before you snap. Try to see things from where he sits. Love is in sickness and in health. Allow yourself to be a couple even in sickness. Treasure every day you have with your loved one. Life is short. You still have plenty of time to sing like no one is listening, dance line no one is watching and laugh often!

Being a caregiver is one of the hardest jobs I have ever done....but I married for better or for worse and I am sticking to it. 50 years with the same man....and the PD and Diabetes fight each other so much of the time...I feel for all of you and your pain. I know it hurts to see Bob in so much pain and I can't do a thing about it other than give him a pill. He also is stubborn and doesn't want medication all the time...so the battle rages. I just tell people who make stupid statements to come on over and spend a day with us. I would love the company and it would open their eyes. That shuts them up....wait till they have to clean up some of the messes....that would send them running....Be kind to yourselves caregivers...because burnout sneaks up on us and we become the patient of a different kind of disease. My faith is what brings me thru each day and I pray you all trust in God and seek his help during the darkest of times. My love and prayers go out to all caregivers of this horrible disease.....we too are victims of PD....

God bless all of the caregivers on this site. It is so very hard to watch the love of our lives go through this & slowly slip away from us. And other peop!e (sometimes family members) & their stupid, insensitive comments don't help matters. Without my faith in God I know that I would completely lose it. I pray for all of you.

Well said @A MyParkinsonsTeam Member, I totally agree, it`s not very often I lose my patience with my hubby. I find I lose my rag with other people who don`t have a clue to what`s going on. They can say the most stupid things. Today for instance the car broke down the battery was flat, it took me nearly 2 hrs to sort it out with the breakdown cover, Trevor was getting more and more agitated his tremors got really bad , and one dear friend said to him "well it`s just the battery mate, just put it down to one of those days!! I could have screamed as we were both frozen, I had to cancel my hospital appointment as we didn`t get home until half an hour before. We hadn`t had any lunch and to be quite honest I was beginning to wonder if my husband was fit to drive!
Rant over!!

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A MyParki...

Yes, bless everyone who is on this site because everyone of us knows all too well what this disease is like.