@A MyParkinsonsTeam Member, I hate to hear about the assisted living; I am on the list to go in. It is a nice one; every one was smiling...
Having a movement disorder specialist definitely helps; I had PD 37 years before I saw someone who knew what was wrong. I can say that exercise helps a lot; it won't get rid of symptoms but it will slow down the progression and help you feel better. I've had it 40 years now, but I stayed quite active for a very long time. You can learn a lot about PD and associated disorders by reading online articles if you look up Parkinsons on Google. I will say, I come from a family of doctors, nurses, Pts, Ots, and other medical professionals so I do understand much of what the doctors say. I also worked in a hospital. And I love research.
@A MyParkinsonsTeam Member, advanced Parkinson's is the stage at which you cannot stay alone all the time, and you need lots of help. It's the stage my uncle is in right now; in a wheelchair all the time he's up, complete care now, especially since my Aunt died a few weeks ago of cancer. He isn't expected to live much longer. Your doctor should be able to tell you. Of course people don't die from PD, but usually either from complications of PD, or somethng like pneumonia or UTI which often comes with PD. We often live about as long as non-parkies.
PD has 5 stages, I am stage 4, stage 5 is imobile, bed ridden, near end.