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Do I Have Parkinsons Or Not?

Do I Have Parkinsons Or Not?

One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more

A MyParkinsonsTeam Member said:

And here I come with a totally different answer all together. There is parkinsonism, which is an umbrella term for all sorts of Parkinson-like symptoms. Usually it's Parkinson's disease, the most common of the parkinsonisms. It's called idiopathic Parkinson's, meaning they don't know what is causing it. That makes up about 70% to 80% of people with these symptoms. However, certain medications and chemical exposure can cause the symptoms. But as a neurologist told me, in the end they're all treated much the same. When Sinemet doesn't help it really may just mean you need something else. Sinemet makes me dreadfully ill so I cannot take it. However, there are other drugs which can help. I use EMSAM, a 24 hour selegiline patch along with klonopin and ropinirole and a med for muscle relaxant for spasms. There are other ones as well because not everyone can take Sinemet. So even if the doctor calls it parkinsonism it won't make a difference in the long run. Only if the diagnosis ends up being something non-parkinsonism, something totally different, will it make a difference. Also remember that not everyone has the same symptoms, or to the same degree, so while we are similar we are not the same, so whether you get worse quickly, slowly or anywhere in between, it won't necessarily tell you much about your diagnosis except that you're moving at your own speed. I have had Parkinson's for 40 years now, and only in the last 2 years have I really noticed things are much worse. I hope this helped. Regardless of the diagnosis make sure you keep moving because it reduces stiffness and helps to reduce the speed at which the disease.
Hugs, and I truly hope you find a correct diagnosis.
Hugs,
Teresa

posted over 2 years ago
A MyParkinsonsTeam Member said:

@Cathieliz: I am unfamiliar Kenosha, WI. What large city are you near? i ask that because it is far better to get a neurologist
1.has a major back ground in Parkinsons
2. working out of a large hospital
3. working out of a university.

Did your primary care doctor refer you to this neurological group? If he did, go back to him/her and tell the doctor what happened AND that you are not only CONFUSED, but concerned for your proper care. Tell your PC-MD, that you need a neurologist who specializes in PD. I, personally am appalled that the two diagnosis are diametrically opposed!! Parkinsons is NOT black and white!!

Please let me know what you decide to do and any further outcome!! I am going into my 15 year with PD. I have read almost everything I can find on PD. I am not the be-all-and-end-all on the subject. I have not gone to be board certified, not do I have license to practice neurology.... I am wondering which one of the two doctors you saw follow in my footsteps!!'
Please keep me personally informed.

posted over 2 years ago
A MyParkinsonsTeam Member said:

Did you get any improvement in symptoms when taking Sinemet? If the answer is yes, then you probably have PD. If no, then the second neurologist may have the right idea. Diagnosis is not always clear and easy, more a matter of trial and error. Good luck

Audrey

posted over 2 years ago
A MyParkinsonsTeam Member said:

I have been cleared for DBS surgery, met a lady at. HAPS meeting had it done 2 weeks ago, doing excellent

posted over 2 years ago
A MyParkinsonsTeam Member said:

I’m allergic to all pd meds and would rather not have pd at all but I have so I am happy to have typical pd Whichspreads to both sides. True we all are different in the speed and symptoms of the Disease, but I am so grateful not to have parkinsonism which cold mean all the nasty types of pd. Like I said I am so pleased to have the slow pd. I recently had dbs and I cannot be more grateful and happy for its success I totally feel normal again and would recommend it it. How ever dbs is not for everyone

posted over 2 years ago
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