What can I do about the nerve pain and cramps in my legs and feet
I've been trying to exercise and walk more often. I can walk, but after about 6 to ten minutes I begin to get stiff on my left side and I can feel the sciatica causing pain through my left leg and side. After a while my left foot will start to drag a bit. But if I go too long, My fibromyalgia begins to flare up as well. and then I will start hurting all over
Yet when I try to discuss these symptoms with my neurologist I am… read more
Ropinarole is a HUGE. Help. So are bananas. Vitamin D-3.
My first neurologist was a dumb - - -! Didn’t take me too long to realize he really didn’t know enough about Parkinson’s to even answer basic questions about the disease. So I looked for a movement disorder specialist that did clinical trials and really researched them and patient reviews. I found the one I wanted was Baylor College of Medicine in Houston and their Parkinson clinic. But before I could go there, I had to change my insurance. This doctor was also 3 hours away, but he’s honestly good enough that I only have to see him every 3-6 months unless I feel I need to see him more. Anytime I have a question, need a refill of prescription or something new comes up with my Parkinsons, he encourages me to just email him, and he he can answer my question right away. This doctor has been a godsend. So one of the first things I would do is research a move to a different doctor. I think you will feel so much better under the care of a doctor who understands that Parkinsons does cause pain. Anyone that says different has never had it. Blessings — Vicki
I have been on Gabapentin for a number of years and it was slowly losing it's affect on me. I switched to Lyrica and the major pain slowly went away. I still have the painful leg cramps and the sciatica flareups. the Sciatica pain returns and gets worse as I move twist and bend. But the majority of the pain has gone away.
I can try that, or maybe and avocado now and then. They both have potassium. Perhaps I need to watch my fluid intake. Too much caffeine as in coffee for me can flush too many electrolytes out of your system.
I stopped drinking soft drinks and mainly drink green tea and black tea mixed for Ice tea.
It has a refreshing flavor I like. 4 bags of Lipton or any other black tea and 4 bags of green tea. I've been able to cut the sugar down to about 1/3 of a cup per gallon... I've been trying Stevia....which I like better than any of the other sweeteners that aren't cane sugar or from sugar beets. It was my neurologist and primary care physician who told me that Parkinson's isn't associated with pains. I found another primary.. but now that I am with out insurance, I need to get on medicare if possible and find another neurologist and primary again.
But ever since I found the Brian Grant foundation and the Davis Phinney Foundation... I have been finding more people who have had similar problems with pain as myself.
It's been quite reassuring.
Good luck to you and the pain in your legs. You are the only one who knows how it hurts.and how much exercise you can handle. My opinion is do what you can until you reach the point of too much pain, then stop. That comes from my physical therapist not me. I just finished an exercise program designed for us with PD. When ever the pain started, she would say stop there and rest awhile. If you have not had PD, as most doctors have not, they can't really know how we feel. Book learning is one thing but living it is another. We are our primary care givers. Keep on keeping on.
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