Does anyone take Rytary to smooth out instances of dyskinesia? Did you have more side effects? My doctor said I would feel weird on it.
@A MyParkinsonsTeam Member
As I'm sure you know by now, everyone reacts differently to medication. I was looking for something to help dyskinesia and Rytary was not helping. Right now, I'm just living with it. Sorry that you had that bad experience.
I was put for about one year on Rytary. My neurologist started me with a low dose.. I felt better than ever and I experienced an exceptional increase in energy. My dyskinesia disappeared nearly completely. The goal was to get me off the LC. Within 6 months I became very aggressive, combative as well as very inquisitive. On a trip to Las Vegas I had a serious paranoia attack accusing my husband wanting to murder me. I was taken off Rytary immediately..... the rest is history. I very often feel sorry for the care takers. I get often up in the morning and promise myself to behave.better and be less self centered, it is hard.....the hopelessness that this will only get worth is so depressing....
It hasn’t work yet meds have not worked for me so we are looking for better option. I am not a candidate for DBS I have to just keep my faith
Did you take some time to get used to it and also I have very bad dyskinesia and Dysonia my movement disorder doctor is thinking about doing a dopamine pumpAnd I am not too sure about that
I was having meds increased on a regular basis and ended with movement 24/7 and got 0 hours of sleep over 7 days! Ended in hospital where they had to knock me out to get some rest then restarte my meds carefully changing the dosages until they and I felt the rig combination for me! It was a terribly painful and exhausting experience and took me months to get back to my physical exercise program-deep tissue massage helpe a lot!