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Just spoke to my London based specialists about the likely possibility of this exenatide drug being used for dyskinesia this man was head of trial team when I was on this drug trial. He said at the moment there is not enough evidence to suggest it could be used for dyskinesia and once all the cornavirus problems have died down we will be running a 3rd fazed trial to see exactly what it can do. So personally I would stick with the current recommend treatments that are available. I will be seeing… read more
Hi.... I also suffer with dyskinesia. I will be interested in what you find out. My doctor just informed me that I also have Functional Neurological Symptoms and cognitive behavioural therapy may help. He advised I get the book "Overcoming functional neurological symptoms.. a five areas approach" . I found it on Amazon. I am not sure if this helps or not. Just a suggestion !
Have a great day!!!
I am just about to start cognitive behavioural therapy. Will let you know if it’s useful
Thank you with the lock down they have called me to start. Did you also get that diagnosis? I am having a hard time wrapping my brain around it.
I am taking Amantadine for dyskinesa. It helps me.
Bettyblue ,this is news to me! Keep me posted. John
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