I'm currently taking stalevo 200 in the morning and every 2 hours 1:50 along with that taking the new medication nourainze and recently been put on ADHD medication for energy but finding I am extremely dizzy and fatigue then usual I was able to walk my dogs and clean my house even though it's a struggle now I'm unable to do that at all I'm wondering if this to medication that's causing It. I can't take / levodopa because my feet swell so what medication work for you that makes you feel more… read more
Do you mean you're taking stalevo 200 and then stalevo 150 every two hours ? How many a day ? It's recommended to take max 8 of any size stalevo per day since each has the same amount of entecapone. I don't recognize nourainze. I had good results with low dose pramipexole with stalevo but they take about two weeks to level out in your system. They have two effects, one immediate and the second after about two weeks. They can make you dizzy when you stand up quickly and / or fall asleep without warning. And of course compulsive behaviour. For me stalevo was very tricky to absorb. I had to take with 500ml of water, and make sure I took them 1/2 hour before or an hour after food. Obviously difficult with 2 hour schedule. I couldnt eat egg whites, cheese, or large portions of meat or pasta or prepared sweets or I had no benefit. The only way i could tell if I was absorbing well was the colour of my urine. Dark orange I was going to feel good, pale yellow or clear I was in for hours of rigidity and fatigue. I no longer take stalevo since my dbs but I remember it well.
I never took the meds you're taking (I take 10 carbidopa/levadopa a day) but from what I understand, most of the PD drugs cause the same symptoms you describe with some people. I describe it as hitting a wall. I just need to sit down and do nothing. I was doing Rock Steady Boxing which is for PD patients. It seems to be proven to slow down and almost stop the progression of the disease. Now that the Covis-19 virus has stopped the program, I can tell my energy is going down. Good luck and stay positive.
How did DBS work for you?
Vain question but did you have to shave your whole head?
I take a toll 7 stalevo throughout the day. I start at 8 a.m. I'm finished at 7 p.m. I give my brain breaks for the night. Thank you for your advice I also have DBS unilateral
I’ve take levadopa without problems. Sorry you can’t