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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Highland, UT

When I go to sleep. My muscle in my legs and sometimes arms tend to move then jerk involuntary constantly almost like a partial seizure— all this besides my hand tremor.this can go on for some hours. I noticed when I take levodopa Right before bed they stay 95% calm. Do any of you experience this- is this part of PD ? Please answer

October 27, 2020
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A MyParkinsonsTeam Member

I had the exact same thing. It was like restless body syndrome. It’s your dopamine level is low. My doctor prescribed carbidopa/levodopa ER at bedtime and they helped a lot. Over times as my PD worsened i did have to take something for sleep as well. But lack of sleep really messed with my symptoms. Take care
😊💗

October 30, 2020
A MyParkinsonsTeam Member

Dannyboy:

Hi 🤪
Have you tried neupro patches? I have been using them for years... I ran out a few months ago - couldn’t get them approved and they are $$$ but my doctor ( who is amazing ) gives them to me! I have severe pain in my legs at night and the patches make it bearable that and three muscle relaxers along with my other meds and I can sleep at least four hours! Sometimes more - hopefully you will feel better .,, everyday is a new day

October 27, 2020 (edited)
A MyParkinsonsTeam Member

So does my husband

November 5, 2020
A MyParkinsonsTeam Member

Thanks for the info

November 2, 2020
A MyParkinsonsTeam Member

Yes Dannyboy, my husband has this problem. He has always had restless legs (I call it restless body, as his whole body moves) but since he has gotten PD it's much worse. It drives him crazy & he finds it really hard to sleep. He also has violent dreams and wakes up trying to hit someone. It's very hard to deal with.

October 27, 2020

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