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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Orlando, FL
January 2, 2021
 · 
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A MyParkinsonsTeam Member

yes. it really helped too! but after 2 yrs.my pd has changed enough that
i don't really need it now It's a pretty sick premise to kill off muscle to ease the pain but it works. It grows back. Can only get shots every 3 months. It really saved me, I had debilitating tightness for a long time. I suggest you try it once and see how you do. I was glad I did. Its nice to find something that actually helps!

January 11, 2021
A MyParkinsonsTeam Member

Yes. I have cervical dystonia and it has helped for over a year now. Reduces the tightness and pain. However recently the shots have caused my neck to drop forward. Very uncomfortable and dangerous. Doc says PD is an everchanging disease so maybe I won't need the shots for a while. I have to wait until it wears off to see how things end ul.. Also, insurance will only allow it every three months. t did make a huge difference to my [pain levels though I urge you to give it a try,,,

January 7, 2021
A MyParkinsonsTeam Member

Yes. It helped.

January 3, 2021
A MyParkinsonsTeam Member

yes. it really helped too! but after 2 yrs.my pd has changed enough that
i don't really need it now It's a pretty sick premise to kill off muscle to ease the pain but it works. It grows back. Can only get shots every 3 months. It really saved me, I had debilitating tightness for a long time. I suggest you try it once and see how you do. I was glad I did. Its nice to find something that actually helps!

January 11, 2021
A MyParkinsonsTeam Member

When I asked my neurologist last week about getting Botox, he immediately nixed the idea saying that it would make my neck stiffness worse. I am getting a second opinion in Gainesville at the Movement Center.

January 11, 2021

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