Who Has Had DBS? | MyParkinsonsTeam

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Who Has Had DBS?
A MyParkinsonsTeam Member asked a question 💭

I'm interested in everyone's/anyone's experience if you have had DBS. I'm considering - will discuss it with my doctor next week. I have had PD for 13 1/2 years. I'm now 64, "off" time is a LOT of the time; tremor/cramping;
Just want to know what y'all have to say about it.

Thank you!

Missy

posted January 28, 2021
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A MyParkinsonsTeam Member

My guy, partner, has had DBS for over 5 years. His experience was excellent. I cried trying to thank his surgeon. One side of the brain he just sailed through and was flirting w the nurses when leaving the recovery room. One year later, the other side was done, but a very different recovery. He cried and was very emotional about almost everything. Only lated about 3 months. All that being said, his quality of life has improved dramatically and recommends this miracle to everyone. No regrets.
Best of luck to you, big hugs
Mitzi

posted November 21, 2021
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, they did not shave my hair off at all. Bean

posted January 28, 2021
A MyParkinsonsTeam Member

They have to shave your hair off but it grows back was the way I looked at it. I would do it again.,Surgery really not painfull. Recovery fast. I love it made me a new person. I swear by a DBS., I’ve heard nothing but good about it from others even.

posted January 28, 2021
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member,I would say, go for it! I had it in 2019 but still trying to get the right settings in the programming of the unit. But many more people seem to have very good results with it. I did however get rid of some symptoms but developed some new symptoms after DBs like anxiety, nervousness and depression. I did get rid of my tremor in my right hand and the dystonia in both feet, which was awful. I would have liked to get rid of taking so much medication as I take mine meds every two hours and seem to have more OFF time then good time but that has not happened yet. I have had PD for 16 years. Hope this helps. Bean

posted January 28, 2021
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, No not me yet but that is an excellent question. Cannot wait to see the responses. Bean

posted February 24, 2021

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