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My Hwp Was Just Diagnosed With Parkinsonism But They Don't Know Which Kind Yet.

My Hwp Was Just Diagnosed With Parkinsonism But They Don't Know Which Kind Yet.

Does anyone on this site have an atypical Parkinsonism or caregiver for someone who is diagnosed with it? If so, please get back with me. Thanks!

A MyParkinsonsTeam Member said:

Finally a diagnosis, pd with central pain. From what I’ve read, central pain is a rare condition that can be caused by pd and is hard to treat. I started a new medication today which is supposed to block faulty signals from the brain. I haven’t felt this good in quite some time, but it’s only the first day. Time will tell.

posted 5 months ago
A MyParkinsonsTeam Member said:

Thank you for responding to me. I was actually asking about Parkinsonism which includes 4 kinds of atypical Parkinsons. They are: CBD, PSP, MSA and LBD. Gets very detailed and confusing, doesn't it?!
Have a great day!

posted 6 months ago
A MyParkinsonsTeam Member said:

In reply to earllier , been 4 years now and i was told should be 2 years or not at all ! not looking good for me BUT APPARENTLY PEOPLE DO RECOVER SO ALL THE BEST HOPES EVER.. ( MINE WAS CAUSED BY SEROQUEL) XXXXX🙂

posted 5 months ago
A MyParkinsonsTeam Member said:

Sulyn, same here. My HWP has severe pain all over his body and also the burning pain off and on. The Sinemet doesnt help him which is another reason it sounds like one of the 4 Atypical Parkinsonism. The sleep study and the DaT scan was very helpful proof that he had a kind of PD.
He finally has apptment with the top PD dr at UNC.
Hang in there, Sulyn.

posted 5 months ago
A MyParkinsonsTeam Member said:

I have Parkinsonism. The doctor suspects Atypical Parkinson’s but hasn’t made a definite diagnosis yet. It is taking time. I’ve heard the same thing from others. I started with a tremor in August 2020. Propanolol is working well for that. I also have balance issues and am in Physical Therapy. I was having difficulty walking in a straight line. Now I use a cane when I go for a walk or if I have have to walk a long distance. Around the house I don’t need one.I try to go for a walk every day. The PT is also strengthening my muscles. I was unaware of how weak they were becoming until I started PT. My biggest issue right now is pain. Two kinds, sometimes deep dull pain and other times burning pain. Always in my shoulders, arms, hands, and legs. I am taking Gabapentin and supplement with Tylenol when needed. Sometimes that’s totally effective, most times I have at least minor pain, which I’ve learned to disregard for the most part. Does any of this sound familiar?

posted 6 months ago
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