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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Hwp Was Just Diagnosed With Parkinsonism But They Don't Know Which Kind Yet.

My Hwp Was Just Diagnosed With Parkinsonism But They Don't Know Which Kind Yet.

Does anyone on this site have an atypical Parkinsonism or caregiver for someone who is diagnosed with it? If so, please get back with me. Thanks!

A MyParkinsonsTeam Member said:

Finally a diagnosis, pd with central pain. From what I’ve read, central pain is a rare condition that can be caused by pd and is hard to treat. I started a new medication today which is supposed to block faulty signals from the brain. I haven’t felt this good in quite some time, but it’s only the first day. Time will tell.

posted over 1 year ago
A MyParkinsonsTeam Member said:

Thank you for responding to me. I was actually asking about Parkinsonism which includes 4 kinds of atypical Parkinsons. They are: CBD, PSP, MSA and LBD. Gets very detailed and confusing, doesn't it?!
Have a great day!

posted over 1 year ago
A MyParkinsonsTeam Member said:

Today I had an appointment and asked more questions. They are still NOT giving me a clear diagnosis but calling it something neurological, central pain which could be caused by several things and I probably have fibromyalgia too. They said I do not fit into a square box, that I have a very complicated case and they don’t know how to treat me yet, except for pain.
The doctor said that it could be several weeks before the new med starts to work and that I just happened to have a couple of good days right then when I started taking it.
The medication is called Cymbalta.

posted over 1 year ago
A MyParkinsonsTeam Member said:

In reply to earllier , been 4 years now and i was told should be 2 years or not at all ! not looking good for me BUT APPARENTLY PEOPLE DO RECOVER SO ALL THE BEST HOPES EVER.. ( MINE WAS CAUSED BY SEROQUEL) XXXXX🙂

posted over 1 year ago
A MyParkinsonsTeam Member said:

Sulyn, same here. My HWP has severe pain all over his body and also the burning pain off and on. The Sinemet doesnt help him which is another reason it sounds like one of the 4 Atypical Parkinsonism. The sleep study and the DaT scan was very helpful proof that he had a kind of PD.
He finally has apptment with the top PD dr at UNC.
Hang in there, Sulyn.

posted over 1 year ago
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