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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 15, 2022
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A MyParkinsonsTeam Member

Yes Ma'am! The rolling of my right foot is considered to be dyskenesia. It does it when I'm walking or standing still. Those toes don't usually tighten, but the left toes are constantly tightened and curled under. My toes have actually changed shape due to being in that muscle spasm for so long. They are painful to walk on and painful to straighten out. I used to stand on my tip toes to stretch then out whenever I could, but it doesn't help anymore. This down is called distonia, and it can be anywhere on the body. Toes are the most common. I'm not sure where you are in this battle, but stretch them out as often as you can. You are not alone. And I'm adding you to my team. 😁
Blessings, Karen

May 15, 2022
A MyParkinsonsTeam Member

Thank you very much Karen. Your suggestions and feedback are helpful. I ordered a protelous orthotic sole on line. I just got it. It may be helping. I will know if the side of my foot is less sore in time.

May 15, 2022
A MyParkinsonsTeam Member

Thanks Judy . I hope you discover something to give you relief,

May 16, 2022
A MyParkinsonsTeam Member

Some Dystonia ,like mine, is dopamine responsive, meaning that it response to levodopa. Since I take levodopa for my Parkinson’s it helps my foot a little. Besides my toes curling my whole foot cramps and my toes have pins and needles pain. I use a Tens unit, salon pas pain patches and Salonpas cream with lidocaine. My husband brought a can of ICY HOT MAX with lidocaine, it also works well. I use ice packs and heating pad. I have had two rounds of Botox injections in my leg. It takes several visits to get the right amount in the right spots. Both of mine lasted for six weeks. You can only get them every 3 months. We are praying that my DBS surgery will also address the foot issues. You really need a movement specialist.

May 20, 2022
A MyParkinsonsTeam Member

Check out Dystonia. I have focal foot Dystonia secondary to Parkinson’s. My right foot twists and turns.
My toes curl under and try to see how far apart they can from each other.

May 16, 2022

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