Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam

Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

In Layman’s Terms, Is Parkinsonism Worse Than Parkinson’s And Is The Prognosis Of It Worst Than Parkinson’s?

In Layman’s Terms, Is Parkinsonism Worse Than Parkinson’s And Is The Prognosis Of It Worst Than Parkinson’s?

posted June 19
A MyParkinsonsTeam Member

I just recently learned there is a test which is being used in large neurology centers which is being used successfully to diagnose MSA and I believe PSP. They have found the proteins which misfold in those diseases are in places other that the brain. They have found a small sample of skin can be used to diagnose those diseases. I believe they are still researching it but it is close to being released for wider use. It sure would be nice.
Teresa

posted July 2 (edited)
A MyParkinsonsTeam Member

Parkinsonism is an umbrella term which covers several related diseases in which dopamine is lost. The only one which is not eventually fatal is idiopathic Parkinson’s Disease; it is also the most common of the parkinsonisms. Lewy Body Dementia is the next most common. All the rest are considered rare and very rare. I have Multiple System Atrophy (MSA) and it affects around 4-6 people out of 100,000. And there are several other ones. There is one called drug induced parkinsonism which is not fatal and which sometimes goes away, sometimes not, depending upon the drug which causes it. It resembles PD but is not idiopathic since the cause is known. There is also a cause from small strokes which can resemble PD but is not. Many/most of these are diagnosed as PD at first but then a person develops symptoms which do not go with PD at which point the diagnosis is changed, although there are times when it is missed. One way to tell the difference is how effective levodopa is, but the are certain symptoms which will develop which gives the doctor an idea what is going on. Those symptoms differ depending on the final diagnosis. And sometimes the final diagnosis is only determined by autopsy.
Teresa

posted June 19
A MyParkinsonsTeam Member

Thanks to all for bringing the great medicine of laughter to this website. One of my favorite people is Helen Keller. One of her quotes “ Keep your face to the sun and you’ll never see the shadows. “ Her obstacles were many, but her faith amazing. Stay strong and love each new day. 🙏🙏
Nancy
This probably sounds like I am wearing Rose colored glasses and perhaps I am. My very best to all❤️

posted September 11
A MyParkinsonsTeam Member

Well, they don’t call it “practicing medicine” for nothing. A doctor can’t possibly know everything, which is why we must look for the right fit, and it IS exhausting.
Teresa

posted October 27
A MyParkinsonsTeam Member

I agree I had a Dr tell me after another Dr gave me wrong diagnosis that Dr's can be scarry

posted October 27

Related content

View all
How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
Can Anyone Enlighten Me On The Term Parkinsons Plus Please?
A MyParkinsonsTeam Member asked a question 💭
What Is Parkinsonism?
A MyParkinsonsTeam Member asked a question 💭
Already a Member? Log in