@A MyParkinsonsTeam Member, nOH can lead the way to Afib. That would make ptty-pats in your chest. I’d be.inclined to check with your cardiologist to be on the safe side. Those blood pressures are pretty scary looking too; 54 systolic would put me on the floor. Like my Neuro said, falls can be more dangerous to PDers. You’re needed here!

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A MyParki...

Thank you Jeri I am in contact with my neurologist on a regular basis. I sometimes put a question out here, not to get solutions, but get feedback. If someone is going through either the same thing that I am going through at the time or has gone through it in the past I’d really like to hear their perspective. That’s what’s great about this group. In my mind, the whole idea of this group is sharing and getting perspectives from each other. Thanks for your input. Hugs

Yes I do Teresa. nOH . The other morning it was 213/107 then it on some days drops to as low as 54/36…. Drives me crazy. Could be one reason I am sick everyday!

I have them usually about 3 am. I'm started taking another dose of Rytary That has helped my morning vibrating legs. They don't wake me up now. Hope yours get help

Yes< I have had those and still do. I had them b4 i was diagnosed and didn't realize what they were or that is is part of PD. Had a long time b4 i was diagnosed. Sorry yours are getting worse, honey. I had learned to live with them because I had no idea I had PD at the time. So sorry with every thing else you have going on you have to deal with yet another PD thing. God bless us all. Love and hugs