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About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are There Caregivers In This Group?

Are There Caregivers In This Group?

My husband has newly diagnosed PD. He's 69. I'd like to talk to other people who are caregivers and perhaps get some advice. Any caregivers out there?

posted July 26
A MyParkinsonsTeam Member

Yes. I am 61. My husband is 66. He has had PD for 16 yrs. Best advice I can give is to look to what is ahead of you financially, physically and emotionally. Make plans to prepare. Then live each day and stop looking in the future. Enjoy every day. Learn to be flexible in schedules and realize life’s daily pace will be much slower and that is okay. It gives you time to savor life.

posted July 26
A MyParkinsonsTeam Member

The time is now to get that one story house, with walk-in shower and grab bars in bathroom, at exits ...space big enough to move about or exercise inside, place outside to move about easily, rooms with windows that have pleasant views outside ...from seated areas or lying down areas inside...and in a location where you can easily access whatever you need, sufficient storage etc, neighbors, family and friends within same town ... especially if you become homebound, it's nice to have visitors with easy access.

posted August 11
A MyParkinsonsTeam Member

I was hubby's caregiver for 7 years since he was diagnosed. My husband passed at the end of June at 79 yrs. Residence needs to be compatible with mobility decline. We moved into a home that was one level, but had to remodel our shower so he could shower safely...
created a walk-in shower with shower heads at each end wall and multiple grab bars within shower, added a moveable shower chair we purchased, more grab bars installed to help him to pull himself on/ off toilet, and grab bars inside and outside both exits. Replaced old with new elongated, higher commercial toilet that has powerful flush. Purchased hospital type bed that had electric controls and placed it in living room so I could monitor him while napping or sleeping, as I worked in kitchen. Made sure all dining chairs had arms...captains chairs. We purchased a recliner chair that had simple electric controls, also had transport wheelchair available, commode available, U-Step Walker (especially designed for people with Parkinson's)...all of these items were used by my husband at some time along his journey. Hope this helps...

posted August 8
A MyParkinsonsTeam Member

I am an 89 yo. I was very active until 3 years ago when started falling often. Had a Dat Scan which measures the Dopamine in brain. It is an easy test and worth the time
it takes to perform. I find exercise is key. It keeps me going.

posted August 1
A MyParkinsonsTeam Member

I am a caregiver, too. My husband is 83. He has probably had PD for years but we didn’t get a diagnosis until after a bad fall last year (broken vertebrae) and I began to notice a cognitive decline. A Datscan confirmed the neurologist’s opinion. He was not very active before and is less so now. It is a journey. Not easy. Some days I am very depressed. I am 14 years younger and at times feel very restricted as I can’t leave him overnight and he is not much interested in traveling. Between Covid and this, social life has vanished.

posted July 27

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