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Parkinson's and the Burden of Caregiving

Posted on April 11, 2018

Sometimes Parkinson's disease can feel like a burden, for the person with the condition and family members or caregivers. One member of MyParkinsonsTeam wrote, “I need my children to be involved, yet I don't want to burden them. I feel like a rudderless boat without a paddle.” Another member lamented that he can’t “stop thinking and carrying this burden every single minute of my life.” Members encourage each other to find support resources that meet the needs of people with Parkinson's and family members. “Find a GOOD support group and take your wife with you,” advised one member. “There’s no way she knows how you feel or what you’re going through. You can't understand what she’s going through, either.”

On MyParkinsonsTeam, the social network and online support group for those living with Parkinson's disease, members talk about a range of personal experiences and struggles. Feeling the burden is one of the top 10 topics most discussed.

Here are some conversations about feeling the burden of Parkinson’s:

Here are some question-and-answer threads about feeling the burden of Parkinson’s:

Can you relate?
Have another topic you'd like to discuss or explore? Go to MyParkinsonsTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - PD dementia does I believe remove the filters that we normally have; almost like they have no concept of what is appropriate. Can't speak for others, but my husband and I… read more

posted about 1 hour ago

hug

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