Connect with others who understand.

sign up log in
About MyParkinsonsTeam

Parkinson's and the Burden of Caregiving

Posted on April 11, 2018

Sometimes Parkinson's disease can feel like a burden, for the person with the condition and family members or caregivers. One member of MyParkinsonsTeam wrote, “I need my children to be involved, yet I don't want to burden them. I feel like a rudderless boat without a paddle.” Another member lamented that he can’t “stop thinking and carrying this burden every single minute of my life.” Members encourage each other to find support resources that meet the needs of people with Parkinson's and family members. “Find a GOOD support group and take your wife with you,” advised one member. “There’s no way she knows how you feel or what you’re going through. You can't understand what she’s going through, either.”

On MyParkinsonsTeam, the social network and online support group for those living with Parkinson's disease, members talk about a range of personal experiences and struggles. Feeling the burden is one of the top 10 topics most discussed.

Here are some conversations about feeling the burden of Parkinson’s:

Here are some question-and-answer threads about feeling the burden of Parkinson’s:

Can you relate?
Have another topic you'd like to discuss or explore? Go to MyParkinsonsTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.
All updates must be accompanied by text or a picture.

Related articles

Because the physical impact of Parkinson's disease can be all-consuming, you may be dealing with...

How Parkinson’s Disease Can Affect Your Mental Health

Because the physical impact of Parkinson's disease can be all-consuming, you may be dealing with...
According to the Centers for Disease Control and Prevention (CDC), older adults are at higher...

Canceling Is Kindness: Keeping Safe From COVID-19 With Parkinson's

According to the Centers for Disease Control and Prevention (CDC), older adults are at higher...
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude With Parkinson's Disease

This time of the year can be overwhelming with expectations around the holidays, and living with...
Accepting that you or a loved one has Parkinson’s disease can be an important step towards living...

Learning to Accept Parkinson’s Disease

Accepting that you or a loved one has Parkinson’s disease can be an important step towards living...
Living with Parkinson's disease can mean having limited energy, time, and bandwidth. You may find...

Tap Into the Power of Directness: Use "I"

Living with Parkinson's disease can mean having limited energy, time, and bandwidth. You may find...
Keeping promises to yourself is a way to focus on self-nurture. This could mean making a...

Who’s the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a...

Recent articles

Many symptoms of Parkinson’s disease and parkinsonism can interfere with daily life. Parkinson’s...

Micrographia (Handwriting Difficulties) and Parkinson’s Disease

Many symptoms of Parkinson’s disease and parkinsonism can interfere with daily life. Parkinson’s...
Many people with Parkinson’s disease (PD) worry whether they’ll be able to continue driving with...

Driving and Parkinson’s: Your Guide

Many people with Parkinson’s disease (PD) worry whether they’ll be able to continue driving with...
Parkinson’s disease (PD) psychosis most commonly involves hallucinations and delusions. It...

Treatment Options for Parkinson’s Psychosis

Parkinson’s disease (PD) psychosis most commonly involves hallucinations and delusions. It...
Hallucinations and delusions occur for 20 percent to 40 percent of people with Parkinson’s...

How To Recognize Hallucinations and Delusions

Hallucinations and delusions occur for 20 percent to 40 percent of people with Parkinson’s...
Hallucinations and delusions can be a major source of stress for caregivers caring for people...

How To Manage Hallucinations and Delusions: Tips for Caregivers

Hallucinations and delusions can be a major source of stress for caregivers caring for people...
Dyskinesias are involuntary, erratic movements of the face, limbs, or torso that occur as a side...

Poll: What Have You Done To Manage Dyskinesia?

Dyskinesias are involuntary, erratic movements of the face, limbs, or torso that occur as a side...
MyParkinsonsTeam My Parkinson's disease Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close
MyParkinsonsTeam My Parkinson's disease Team

Want to stay up to date on the latest news and articles about Parkinson's disease?