Parkinson's and the Burden of Caregiving
Posted on April 11, 2018
"Can anyone help me? How can I stop thinking and carrying this burden every single minute of my life? Its always there in work, play, talking, walking eating sleeping... I can't consider myself alone it's always me and Parkinson's. How can we forget about it and start thinking as we used to be? I really missed being free." -A member on MyParkinsonsTeam
On MyParkinsonsTeam, the social network and online support group for those living with Parkinson's disease, members talk about a range of personal experiences and struggles. Feeling the burden is one of the top 10 topics most discussed.
Here are some conversations about feeling the burden of Parkinson’s:
- It’s hard and lonely to be a caregiver when your spouse will not tell you what’s going on.
- I need my children involved, yet I don't want to burden them… I never thought of myself as needing much help; now, I have no choice.
- I am disappointing my wife every day in one form or another. She understands, but I have to see that look on her face of love and fear.
Here are some question-and-answer threads about feeling the burden of Parkinson’s:
- I feel alone with this illness. My husband wants to leave me. How do I cope?
- Has anyone else lost a lot of friends because of their Parkinson's?
- As a caregiver, have any of you felt so depressed it's hard to keep going?
Can you relate?
Have another topic you'd like to discuss or explore? Go to MyParkinsonsTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.
A MyParkinsonsTeam Member said:
I love what you posted and am so happy that you got to have fun with your family. Two whole nights sleep that is wonderful. It made me laugh as I can… read more
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