My family has a problem with knowing the difference I try to explain to them if you’re tired really tired sleep will help. With fatigue you can’t sleep or exercise to make it go away To me it’s almost like having 5 pound weights on your ankles They’re there when you go to sleep and They’re there when you wake up I’m 80 years old and I’ve been exercising religiously in one way or another since 1974 so I know when I’m tired and when I am fatigued. My one daughter thinks I should try to get more… read more
Parkinson’s fatigue is hard to explain. You really have to live it to understand it. It’s as much mental as physical. You have a hard time engaging your body or mind to do anything, and wants to get up to sit in a chair. We want to do things, but everything is like climbing a mountain.
If your going to do something, it has to be planned in advance, so you know exactly what you’re going to be doing. Then you can prepare yourself. Spur of the moment is only ok if it’s fully explained and you ok it. No last minute addons, just because you were out anyways.
You know your body better than anyone else on earth. Yes, fatigue and tired are two different animals. Fatigue can be caused by emotional issues, like not being supported by family in your perception of your life and disease. You are allowed to define your own course of treatment. If you need to rest, rest. If you need validation for your convictions, look in the mirror. A nice cup of hot tea can be soothing. Follow your instincts and trust your own power. At 80, you have a BIG voice!! Go for a walk when you want to.
Send them one of the videos from the Parkinson Foundation is explains what we're all dealing with in the Parkinson's world of symptoms especially the non-motor symptoms like smell taste blood pressure fatigue
That’s because the sleep is useless. Most of the time I wake up sleepier than when I went to sleep.
If I’m going to get up and do something every step has to be planned, so I can prepare for it. It’s going to be a fight all the way to stay awake and focused. You can’t just say while we’re out I’m going to do this. That’s not part of the plan. We didn’t prepare for that it’s like saying while we’re out we’re just going to climb this mountain. I know that sounds silly, but I’ve been known to get out of the car and start walking home. I know I won’t make it, but I can just drop on the side of the road and sleep there.
My husband has the fatigue. He would sleep 24 hours a day in his bed or chair. He gets angry at me when I try to get him up and moving.