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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Freezing & Festinating

Freezing & Festinating

I am on C/L but it doesn't help me much with my freezing. I was wondering if there are any meds that anyone knows of that can help.

posted 17 days ago
A MyParkinsonsTeam Member said:

Freezing. try this, it works for me...say out loud KICK and kick your leg, this should help. U tube Power for Parkinsons has great videos/excercises for freezing. I have to look, this one guy has great 15 minute videos and one is on freezing/gait, it has really helped me. (I think it is Health and Wellness???) I will get back to you. Meds don't really help with freeezing...Heal, toe!!!

posted 12 days ago
A MyParkinsonsTeam Member said:

My MDS prescribed Amantadine but it hasn't helped much. My understanding is that freezing is a cognitive issue in that it is a function of how our brain interprets visual cues. As a person with PD the response to a freezing episode is situational and based on experience. For example, going through doorways at a commercial building always triggered an embarrassing freezing episode for me, with entering a building more problematic than leaving one (which is really pretty weird). The process I have used to overcome this issue is actually fairly simple and it works . . . most of the time 🤔. I have noticed that it fails whenever I am in a hurry and start rushing. Anyway, this link has info that has helped me to overcome freezing quite a bit:

https://www.invigoratept.com/blog//how-to-get-u...

Youtube also has a tremendous amount videos with information on how to "thaw out" from a freezing episode.

posted 14 days ago
A MyParkinsonsTeam Member said:

They have an L-Cane that shines a lazer at your feet and helps you to step.

https://www.amazon.com/s?k=laser+cane&adgrpid(Phone number can only be seen by the question and answer creators)&gclid=EAIaIQobChMI98z5nOqj-gIVQ-TICh04VwJFEAAYAiAAEgL3ZfD_BwE&hvadid(Phone number can only be seen by the question and answer creators)&hvdev=m&hvlocphy(Phone number can only be seen by the question and answer creators)&hvnetw=g&hvqmt=e&hvrand=7634296923223959459&hvtargid=kwd-(Phone number can only be seen by the question and answer creators)&hydadcr=6756_11102190&tag=hydsma-20&ref=pd_sl_53qla0y23c_e

edited, originally posted 17 days ago
A MyParkinsonsTeam Member said:

I have cervical dystonia and dysphonia. I had botox injections for each. The stress of getting to a doctor two hours away outweighed the benefit of the shots. They helped for about two weeks every three months. Bummer.

posted 17 days ago
A MyParkinsonsTeam Member said:

Hi hon, long time! Miss you! Prev to the DBS my movement disorder specialist had me on Botox and Amantadine. Helped for just a bit for me but maybe you can talk to your doctor. 🤞🙏❤

posted 17 days ago
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