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Freezing & Festinating
A MyParkinsonsTeam Member asked a question 💭

I am on C/L but it doesn't help me much with my freezing. I was wondering if there are any meds that anyone knows of that can help.

posted September 20, 2022
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A MyParkinsonsTeam Member

Freezing. try this, it works for me...say out loud KICK and kick your leg, this should help. U tube Power for Parkinsons has great videos/excercises for freezing. I have to look, this one guy has great 15 minute videos and one is on freezing/gait, it has really helped me. (I think it is Health and Wellness???) I will get back to you. Meds don't really help with freeezing...Heal, toe!!!

posted September 25, 2022
A MyParkinsonsTeam Member

My MDS prescribed Amantadine but it hasn't helped much. My understanding is that freezing is a cognitive issue in that it is a function of how our brain interprets visual cues. As a person with PD the response to a freezing episode is situational and based on experience. For example, going through doorways at a commercial building always triggered an embarrassing freezing episode for me, with entering a building more problematic than leaving one (which is really pretty weird). The process I have used to overcome this issue is actually fairly simple and it works . . . most of the time 🤔. I have noticed that it fails whenever I am in a hurry and start rushing. Anyway, this link has info that has helped me to overcome freezing quite a bit:

Youtube also has a tremendous amount videos with information on how to "thaw out" from a freezing episode.

posted September 23, 2022
A MyParkinsonsTeam Member

They have an L-Cane that shines a lazer at your feet and helps you to step. number can only be seen by the question and answer creators)&gclid=EAIaIQobChMI98z5nOqj-gIVQ-TICh04VwJFEAAYAiAAEgL3ZfD_BwE&hvadid(Phone number can only be seen by the question and answer creators)&hvdev=m&hvlocphy(Phone number can only be seen by the question and answer creators)&hvnetw=g&hvqmt=e&hvrand=7634296923223959459&hvtargid=kwd-(Phone number can only be seen by the question and answer creators)&hydadcr=6756_11102190&tag=hydsma-20&ref=pd_sl_53qla0y23c_e

posted September 20, 2022 (edited)
A MyParkinsonsTeam Member

"Skills and wellness," with Nathan. He has shorter videos, 15 minutes, that help.

posted October 5, 2022
A MyParkinsonsTeam Member

I have cervical dystonia and dysphonia. I had botox injections for each. The stress of getting to a doctor two hours away outweighed the benefit of the shots. They helped for about two weeks every three months. Bummer.

posted September 20, 2022

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