Has Anyone Here With PD Been Prescribed Kynmobi? | MyParkinsonsTeam

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Has Anyone Here With PD Been Prescribed Kynmobi?
A MyParkinsonsTeam Member asked a question 💭

I’ve been prescribed Kynmobi and been told to reduce the amount of Rytary I take.

posted February 25, 2023
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A MyParkinsonsTeam Member

I had been taking a higher dose of Rytary, 2 capsules 4 times a day, but developed violent dyskinesia after the first two years of good results. I’ve been lowering the amount I take according to the severity of my dyskinesia and moderating my own expectations of what I can accomplish in a day. It seems to be working out well for me however I do experience more downtime. I’ve been treated with C/L for the last 8 years and my neurologist has given me latitude in working out my meds to their best advantage. Each person responds differently to PD meds and therefore requires a tailored rather than a cookie cutter approach to medication.
Hope this helps. Lisa

posted February 27, 2023
A MyParkinsonsTeam Member

They sent me a months worth for free

posted March 4, 2023
A MyParkinsonsTeam Member

What milligram of Rytary are you on? The reason I ask is my Mom is on Rytary, 23.75/95 & she takes one 3 times a day. That is the only drug she has been able to tolerate. Everything made her violently sick & even taking a Zofran with each Carbidopa/Levodopa. Her Neurologist said that her only option left was DBS, which they totally botched causing her to stroke out in the OR. That was a little over a year ago. She now has a new Neurologist who said NO, that was not your last option. So she put her on Rytary which she had never tried & guess what... it works! No nausea, no dizzy spells or blacking out. I want to say to anyone who reads this, I hope you DO NOT use Vanderbilt University Medical Center in Nashville because they will do the best they can to kill you! No joke!

posted February 26, 2023
A MyParkinsonsTeam Member

It is a oral version of apomorphine
I was allergic to it

posted February 26, 2023
A MyParkinsonsTeam Member

Never heard of it. How much rytary are you taking?

posted February 25, 2023

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