@A MyParkinsonsTeam Member
I personally like to get answers from the MPT community. I like connecting with people. I don't get a lot of interaction so hearing directly about personal questions, comments, and concerns is important to me. Yes, I do read the resources and I have learned a lot.
Thank you for your response.
Smile,
Donna 😁
👍💚🍀🙏🙌

Mentioned Users

A MyParki...

Everyone should have a 'trust and will' written regardless of your life condition.

Underlying cause Parkinson’s

Nothing normal about Parkinson’s

With respect to all who answered, once Hospice is brought in, care is centered on quality of life and comfort measures. If antibiotics are going to resolve a U.T.I. Or upper respiratory infection they are given. This is comfort measures. Hospice patients are given medical care, The hospice philosophy accepts death as the final stage of life: it affirms life, but does not try to hasten or postpone death. Hospice care treats the person and symptoms of the disease, rather than treating the disease itself. A team of professionals work together to manage symptoms so that a person’s last days may be spent with dignity and quality, surrounded by their loved ones. Hospice care is also family-centered – it includes the patient and the family in making decisions. I am a retired Hospice nurse of 27 years. My patients were infants to geriatric seniors. I had a wonderful gratifying humbling career. I would encourage everyone to make your end of life wishes known to your family while you can. You can live a very long life with Parkinson’s. You may be inflicted with another life limiting illness. I do not want my family to every have to worry they did not follow my wishes regarding what I personally consider quality of life and death with dignity. No one wants to think about it. I am not an expert, this is only my view. Blessings to all ! ❤️

I don't know for sure, but I think it may have to do with hospice rules. When a person is in hospice, they (or their family) agree that nothing will be done to prolong their lives. That means no antibiotics, no cpr, no breathing tubes, etc. When a person with Parkinson's is stage 5, they need help for just about everything: eating, going to the bathroom, etc. For some people, there may not be much quality of life. So by agreeing to hospice, the person is willing to let whatever happens, happen. Parkinson's doesn't cause organ failure, which is why they say PD doesn't kill you. But weakness can lead to issues that will. Pneumonia, a fall, choking, heart issues, etc. are what actually kill a person who has PD.