Oh dear Merylyn, I wish I could take away your pain. The most horrific pain I was in was when I fractured a bone in my pelvis so I can't even imagine your pain. I promise to pray for you every day and hold you close to my heart
Patti

Oh, I read your story and you have a lot of grandchildren -- though, sadly, you lost one dear grandchild a year or so ago due to car accident. Sending coundolescense and hoping that the day will bring you some relief from your pain....

Holding you close at heart -- you are proactive and strong. You have a lot to deal with....do you have friends and family near also?

I have been on Carbidopa.Levadopa ER 25/100 2 Tablets twice a day, I can take an extra one if jerking gets terrible. I have taken this for almost 8 years. My Parkinson's is pretty stable. I have some jerking, facial tics, frequent falls, memory loss. My big issue is that I got to a pain clinic for thoracic and lumbar spine pain. In fact I go tomorrow for an epidural shot of steroids in thoracic spine. Several compression fractures. I am 72 and they will not prescribe a pain pill because I take Clonazepam 0.5, I have been weaning off but it is hard to do after 26 years on the medication.
So it is drastic, but if this does not help I am going to stop all medications and go on Hospice Care. I do not want to live in this excruciating pain. Not a Debbie Downer, but I want to make my own decisions. Hopefully I will get some relief

I had my injection into the spinal column, he stuck me at least 10 times with a guidance needle to find the right spot. Once that needle was in the right spot he injected. Instant warmth down to my left foot. He said it was supposed to go up and that it was his first time ever to see it go down. My pain was at thoracic level 12 so we will see how things go. I have laid around all afternoon and evening. Just going to bed now. I have a headache and injection sight is sore. He said I was not ready to die and he would put a pain pump in me. However in a week or two I hope to be weaned off the clonazepam. Did I mention that I still go to work as an RN. It is my "identity" and I only work when I want to, I take off for all of my grandchildren's activities and 2 great grands. Life can be busy. I have been a nurse for 52 years. Today the facility I have been with for for over 40 years just terminated me at one of the Clinics that I was casual at. I was shocked. Must not have wanted to recognize me for my years of service. I have been at Urgent Care for 9 years, new company manages it and writes my Pay Check but I wear their name on my jacket. Not Any More. Life keeps throwing me stones