Connect with others who understand.

Sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Success Without Issues Using A Feeding Tube Long Term?

A MyParkinsonsTeam Member asked a question 💭

Seems like bad infections and hospital stays are common? Are there other options?

May 1, 2023
View reactions
A MyParkinsonsTeam Member

If you need a feeding tube someone should teach you how to avoid infections and it does depend on the tube that’s used; there’s more than one kind. Keeping it clean should make a big difference. I was considered for one and the doctor was explaining the pros and cons but ultimately decided against it for now. So I can only speak from what the doctor said.

May 1, 2023
A MyParkinsonsTeam Member

I've never needed a feeding tube thank goodness I can't taste food very much and I don't have much smell but a feeding tube would be difficult to deal with hugs to everybody

May 3, 2023
A MyParkinsonsTeam Member

No food taste good to me. Nothing smells very much. I've basically eat to not feel like I'm starving and to get nutrition but I would avoid a stomach tube if it were possible you have to keep it clean and I know you get perfect nutrition but then you can't eat any food at all I'd really get some input from everybody on this site. Good luck in

May 2, 2023
A MyParkinsonsTeam Member

My husband was on a stomach feeding tube for 6 months. It wasn't related to Parkinson's. He was in an accident. It worked for him. The tube was removed when he could eat food by mouth. There are different feeding tubes. A stomach tube can be placed for extra nutrients if you're not getting enough from eating by mouth. You could still eat and have a stomach tube. The only reason my husband couldn't eat with a stomach tube is because at the time he couldn't swallow at all. He would have aspirated.

June 20, 2023
A MyParkinsonsTeam Member

When I was hospitalized in February of this year after a serious fall where I was diagnosed with aspiration pneumonia, and a cardiac AFIB condition. A “feeding tube “ was discussed but the I was not a good candidate though I did respond to speech therapy which I do today.

May 2, 2023

Related content

View All

Phila

A MyParkinsonsTeam Member asked a question 💭
Wyncote, PA

Theracycle

A MyParkinsonsTeam Member asked a question 💭
Bensalem, PA

Vascular Parkinsonismo

A MyParkinsonsTeam Member asked a question 💭
Italy, TX
Already a Member? Log in