Has Anyone Been In Touch With A Dr. Craig Koehler? I'm Afraid Of The Prescription Side Affects And Their Eventual No Longer Working. | MyParkinsonsTeam

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Has Anyone Been In Touch With A Dr. Craig Koehler? I'm Afraid Of The Prescription Side Affects And Their Eventual No Longer Working.
A MyParkinsonsTeam Member asked a question 💭

Dr. Koehler offers a more homeopathic solution to dealing with parkinsons including diet, supplements and exercise. Thoughts?

posted May 8, 2023
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A MyParkinsonsTeam Member

You're right when it comes to human nature. The cost of Dr. K's program was my red flag. Since I was diagnosed, I've done hours of research on PD patient care. I like Dr. K's natural approach to care and symptom treatment, but I've done enough research on B-1, B-12, C, D and magnesium that his program may be redundant.

I don't know if you read my earlier post but I've met with three neurologist. The first one, who diagnosed me told me that she had no time for my questions. She prescribed sinemet and told me to see her in 4 weeks.

The 2nd neurologist only had me visit with his PA first. I finally asked if there was some kind of test to determine where I was with PD and after some discussion, he agreed to set me up with a deep brain scan. When I finally met with the neurologist over the computer, the neurologist told me that he couldn't find the scan or result. I had them in my email and asked if he would like me to send the info. He said, "No. Just read me the radiologist conclusion." I have personally had a radiologist being wrong in his conclusion and a friend had a radiologist missed the tumor on her knee. He never mentioned it in his conclusion. When I asked the neurologist if he would check the image and come to his own conclusion, the neurologist said that he didn't need to and that he trusted the radiologist.

I was having back surgery and read that PD and some anesthetic don't mix well and that PD symptoms can be worse. My orthopedic surgeon gave me his cell phone number to give to the neurologist to find out more info. The neurologist said that he wasn't going to call!!

The 3rd neurologist is still pushing the sinemet. He has no other options. He has set me up with a movement and balance PT. I no longer feel the need to shuffle and my turning balance has improved. I've been doing some weight training at PT and my right arm is stronger.

So, there you have it. I want to address the PD as naturally as possible. I’m not in denial, I just want to explore my options. My mother had PD and took Sinemet. When she had bouts of delusions and hallucinations her neurologist lowered the Sinemet dosage but she stiffened up.

Stay safe!

posted May 11, 2023
A MyParkinsonsTeam Member

I have a movement disorder specialist (neurologist who specializes in Parkinsons) She has referred me to physical, speech and occupational therapy. All very helpful. Especially exercise. Of Dr Kohler's program. Much of it is commons sense and unverifiable anecdotes. Diet is important and important to learn and do a better job. But $6,000 later what have I really gained that I could not learn myself. ? Not a criticism but a question I need to answer.

posted February 1
A MyParkinsonsTeam Member

A PwP is a person with Parkinson. The MDS is a medical designation meaning 'Movement Disorder Specialist' like an MD.

https://www.google.com/search?client=firefox-b-...

posted May 13, 2023
A MyParkinsonsTeam Member

What is the cost of his program?

posted May 4
A MyParkinsonsTeam Member

I will begin Dr. Koehlers program May 1st. I hope I can find this page to report back to let you know about the program.

posted April 29

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