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Clinical Trials
A MyParkinsonsTeam Member asked a question 💭

Is there a forum where clinical trials are being followed and discussed?

posted May 20, 2023
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A MyParkinsonsTeam Member

https://bvitalpc.com/

posted May 21, 2023
A MyParkinsonsTeam Member

I have participated in several clinical trails for Parkinson’s disease. I day several, because I can't remember without looking the information up, but I've participated in five or six various different clinical trails.
I just recieved a new specimen collection kit from PD Gene @ Indiana University yesterday.
I'm getting ready to perform the specimen collection in a few minutes.
I applied for this trail about six months ago. I answered the questions, passed the reviews of medical history, and passed the interview process. Some of these take can take a year from the start of the interview process through the specimen collections and publishing the results.
I've never been or accepted payment for any of these clinical trails. I only participate in Parkinson's disease related trails. I do them because I have the classical idiopathic Parkinson's disease and I'm hopeful that allowing researchers to study my DNA will assist in finding a cure or the development of a new Parkinson's disease medication.
This one is actually a study funded by the Parkinson's foundation.
Hopefully, the membership on this site will realize the importance of this type of research and actively search out and participate in as many Parkinson's related clinical trails as possible.
Finding a cure requires our participation.

posted August 19, 2023
A MyParkinsonsTeam Member

Thank.you!

posted May 21, 2023
A MyParkinsonsTeam Member

I have found information about clinical trials through the Michael J Fox foundation. I also have found information through our hospitals. We live in Michigan so I go to a few of our large hospital systems that actually have a Parkinson's movement department. U of M Ann Arbor and Henry Ford. I hope that helps! Have a blessed day!

posted May 21, 2023

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