If you or a loved one has Parkinson’s disease, one of the most important decisions you’ll make is choosing the right doctor. Parkinson’s is a complex condition that affects movement, mood, and many aspects of daily life. The right specialist can make a big difference in your care and quality of life.

Importance of Finding a Parkinson’s Doctor

Not all neurologists are the same. While general neurologists treat many brain and nerve conditions, a movement disorder specialist has extra training in Parkinson’s and related conditions. These specialists complete two years of training focused on movement disorders. This means they have more experience diagnosing and treating Parkinson’s at every stage.

Why does this matter? Parkinson’s can be tricky to diagnose, especially in its early stages. There’s no single test for Parkinson’s disease, so doctors rely on symptoms and physical exams. Specialists who see individuals with Parkinson’s every day are more likely to recognize subtle signs and avoid misdiagnosis. They also know the latest treatment options, including clinical trials.

Finding a movement disorder specialist early on is recommended. Research shows that people who see a Parkinson’s specialist often have better outcomes, including improved quality of life and longer life expectancy, thanks to earlier diagnosis and treatment. Yet, only 9 percent of people with Parkinson’s who are on Medicare see a movement disorder specialist, and access can be even harder in some areas, especially for people who live far from large medical centers. Taking steps to find the right doctor can make a big difference in your care.

Here are seven practical tips for finding a Parkinson’s doctor who meets your needs.

1. Ask Your Primary Doctor for Referrals

Your primary care doctor is a great starting point. They often know which specialists in your area have experience with Parkinson’s and can provide referrals. If you live far from a major medical center, you might still see a local doctor for routine care and travel a few times a year to see a movement disorder specialist for extra help with your treatment plan.

2. Do Your Research

Several organizations maintain lists of Parkinson’s specialists and clinics, and these directories can help you find doctors nearby. These organizations include:

• International Parkinson and Movement Disorder Society
• American Parkinson Disease Association (APDA)
• Parkinson’s Foundation Global Care Network
• Hospital websites for neurology or movement disorder programs

If you attend a Parkinson’s support group, you could also ask other group members who they see.

3. Check for Telehealth Options

Traveling to appointments can be hard if you have mobility challenges or live far away. Fortunately, many Parkinson’s specialists offer telehealth, or telemedicine, visits. Virtual appointments can be a convenient option for medication adjustments, symptom check-in, and answering any questions.

Neurologists who specialize in movement disorders are more likely to recognize the subtle signs of Parkinson's and avoid misdiagnosis.

Keep in mind that not every appointment can be made virtual, especially if you need certain tests. Ask your healthcare provider what’s possible.

4. Prepare for the First Visit

Your first appointment with a Parkinson’s doctor is important. Once you schedule your appointment, call the office to see if you need to bring anything specifically or fill out paperwork ahead of time.

For the most part, the doctor will go through your medical history, and you’ll likely need to bring:

• A list of your symptoms, including any nonmotor symptoms like constipation or sleep disturbances
• All of your medications, such as supplements and over-the-counter drugs, and dosage information
• Results from any laboratory or other tests related to your Parkinson’s
• CDs or files of brain imaging
• Contact information for your care team, like your primary care provider and any specialists
• Your health insurance ID card

You may also want to bring along a family member, friend, or caregiver for support and note-taking.

5. Ask About Their Credentials

During your first visit, feel free to ask your potential Parkinson’s doctor about their expertise. According to the Parkinson’s Foundation, here’s a list of questions that you may want to bring up:

• How many people with Parkinson’s disease do you care for?
• Are any additional tests needed to confirm my Parkinson’s diagnosis?
• Which types of treatments do you offer or recommend for me?
• Do any of my medical conditions or medications interact with my Parkinson’s?
• Are there any clinical trials that are suitable for me?
• Can any lifestyle changes improve my Parkinson’s symptoms?
• Who should I reach out to if you’re unavailable between appointments?

You may also want to ask if they recommend getting a second opinion, which is a common practice. Any reputable doctor won’t find this offensive and can provide additional suggestions.

6. Evaluate How You Feel

Pay attention to how the doctor interacts with you during your visit. Make sure they listen to you carefully and answer your questions. You should feel comfortable discussing your concerns with your doctor, and they should make you feel at ease.

If you attend a Parkinson’s support group, consider asking other group members which doctors they recommend.

Remember, Parkinson’s care is a long-term partnership. You want a doctor who works with you and your family to manage symptoms as they change.

7. Look for a Team Approach

Parkinson’s affects more than just movement. It can cause speech changes, trouble swallowing, depression, anxiety, and sleep problems. The best support often comes from a Parkinson’s care team that includes:

• A neurologist or movement disorder specialist
• A physical therapist for mobility and balance
• A speech therapist for voice and swallowing
• An occupational therapist for daily tasks
• A mental health professional for behavioral changes, mood, and coping strategies
• Any other specialists needed for complications, such as an ophthalmologist (eye doctor) or a gastroenterologist (treats the digestive system)

Ask if your doctor can connect you with these resources. Many movement disorder centers have them on-site or can refer you to local providers.

Taking Charge of Your Parkinson’s Journey

Finding the right Parkinson’s doctor takes effort, but it’s worth it. Start by using trusted directories to look for a movement disorders specialist. Choose a doctor who listens, explains clearly, and works with the rest of your healthcare team. The right support can help you manage Parkinson’s and maintain your quality of life for years to come.

Join the Conversation

On MyParkinsonsTeam, people share their experiences with Parkinson’s disease, get advice, and find support from others who understand.

What steps have you taken to find a Parkinson’s doctor who supports your needs? Let others know in the comments below.