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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

PSP

A MyParkinsonsTeam Member asked a question 💭
Oracle, AZ

Is progressive subranuclear palsy actually parkinsons?
Does anyone have this doctor thinks it is what my husband has. Any advice. They just upped the carbidopa-levodopa to 3 pills 3 times a day to see if it helps

May 24, 2023
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A MyParkinsonsTeam Member

He had the datscan but no one said anything about levels. Just that he had PD. When the apD specialist saw him she is the one that said it was the PSP. They are giving him the carbidopa-levodopa 2 pills 3 times a day. It has helped with cognitively but not his walk or slo
w movements or falling backwards. Have to do this for a month to see if it helps.

May 28, 2023
A MyParkinsonsTeam Member

Did he have a datscan done to measure his dopamine levels? I think that helps determine if it is a similar neuro problem or true Parkinson's. I've seen folks with supraneuclear palsy and it looked a little different. Eventually the head is tilted skyward so the person doesn't see where they are walking.

May 27, 2023 (edited)
A MyParkinsonsTeam Member

Yeah me too. Very scary.

May 24, 2023
A MyParkinsonsTeam Member

Those are all very good reasons. PSP is worse than Parkinson’s. I certainly hope it isn’t PSP.

May 24, 2023
A MyParkinsonsTeam Member

Due to him falling backwards. No tremors. Eye contact. Slurred speech at times. Forgetting

May 24, 2023

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