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A MyParkinsonsTeam Member asked a question 💭
Denton, TX

But seriously, I am truly suffering. At lunch, last week we had to leave. I couldn't breathe. Please share your thoughts and suggestions. There's, a lot more summer left. Blessings and Prayers, JudyTx 🌹

June 26, 2023
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Answer Summary

Members rallied around the question of surviving dangerous heat with Parkinson's disease, sharing that the autonomic nervous system damage... Read more

Members rallied around the question of surviving dangerous heat with Parkinson's disease, sharing that the autonomic nervous system damage from PD makes regulating body temperature much harder, turning even moderate heat into a real health risk. Several members offered practical cooling strategies including freezer-stored gel neck wraps like the KOOL MAX brand, cooling bandanas from hardware stores, multiple small rotating fans for air circulation, ice packs on the stomach, and strict avoidance of outdoor activity during peak heat hours. A recurring theme was the importance of staying indoors with AC, drinking water consistently, and listening to your body without pushing through the heat.

A MyParkinsonsTeam Member

The heat wave yall had is moving in the south east now I plan on staying home it should be gone by the weekend they say but we're not young anymore more plus Parkinson it sucks

June 26, 2023
A MyParkinsonsTeam Member

People with PD cannot tolerate temperature extremes. My doctor explains our autonomic nervous system doesn't work as it should. We should stay out of extremes as much as possible

June 26, 2023
A MyParkinsonsTeam Member

If your out and about in this heat you may want a cool bandana . They have them at lowes and home depot. You can purchase a cooling bandana put water on it squeeze it out snap it and tie loosely round the neck. Where a hat that wide brimmed of out in the sun.
You can always use a large bandana to help keep you cool.
Put a ice pack on your stomach. This cools the body quickly.
Stay in with the AC.

June 26, 2023 (edited)
A MyParkinsonsTeam Member

I use to have an extreme tolerance for temperature. I could wear layers and be just fine working in zero degrees or shed them and work all day in 100 degrees. I rarely became overheated or uncomfortably cold.
I'm not sure if it's the Parkinson’s, an age related issue, or a combination, but in the last couple of years, I've noticed that I have difficulty regulating my temperature and comfort levels.
It seems like it's always either too hot or too cold.
I can quickly get overheated and start pouring sweat at 80 degrees, then be freezing at 65 degrees.
It's abnormal, unpredictable, uncomfortable, and somewhat of a pain in the rear-end!
Best wishes,
Ken

June 26, 2023
A MyParkinsonsTeam Member

I can relate to your situation well. The heat never used to bother me, but it is beyond reason now at the current levels.
1} I limit my going out in the middle of the day.
2) I now wear a hat when i go anywhere during the day.
3) Suntan lotion is not an option. A tan no longer means i;m cool.
4)I will not leave the house without a bottle of water within arms reach, in the car, or walking.
5) I drink water more than I used to, and do not work outside during the afternoon hours, Any outside work is done prior to 10 AM.

I noticed several years ago, I sweat a lot more than i normally did when outside, and began to understand more about dehydration. The current heat is dangerous to anyone, and even more so to people with PD. We need to minimize the exposure and impact it can have on us. Insure we are protecting ourselves from the exposure as much as possible, and minimize the impact of the exposure we endure..

I am sure everyone has thingss they do and don't do, but the best ting i can think of is, Avoid the Heat!
Like others in the blog, I find it difficult breathing in the extreme temperatures as of late in Central Texas..

Take Care and Be Safe

June 26, 2023

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