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Dystonia
Does anyone have dystonia of the face? If so, can you describe how it feels? I have a constant pressure/pain in the cheekbones & nasal area.
Thank you for your insight. So sorry you have to deal with that!
@A MyParkinsonsTeam Member I do. The dystonia spread to my face. I experienced many years of a crawling like feeling of my muscles in my cheeks and maybe some twitches of my nose and eyes with my jaw popping. Overtime I now experience my jaw clamping shut and getting stuck. My tongue gets stiff. Problems swallowing if I can at all. My neck protrudes forward and gets stuck. This is just some of the symptoms. The levodopa controls this so I can swallow, e-bike my head up and feel normal. When it wears off the symptoms return along with others. It may have started with feelings of muscle pressure before progressing. I would open a dialogue about it with your doctor if you haven’t already.
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