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Dystonia
Does anyone have dystonia of the face? If so, can you describe how it feels? I have a constant pressure/pain in the cheekbones & nasal area.
Thank you for your insight. So sorry you have to deal with that!
@A MyParkinsonsTeam Member I do. The dystonia spread to my face. I experienced many years of a crawling like feeling of my muscles in my cheeks and maybe some twitches of my nose and eyes with my jaw popping. Overtime I now experience my jaw clamping shut and getting stuck. My tongue gets stiff. Problems swallowing if I can at all. My neck protrudes forward and gets stuck. This is just some of the symptoms. The levodopa controls this so I can swallow, e-bike my head up and feel normal. When it wears off the symptoms return along with others. It may have started with feelings of muscle pressure before progressing. I would open a dialogue about it with your doctor if you haven’t already.
Hello, My Mum Has Really Severe Dystonia Which Is Keeping Her Awake Almost Every Night The Co Careldopa Does Not Seem To Ease Any Of It.
Has Anyone Used A Massage Gun To Relieve Dystonia Pain? What Has Been Your Experience? How About Heat, Say From A Heating Pad?
Does Anyone Else Have Pain On The Top Of Your Feet?
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