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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 25, 2023
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A MyParkinsonsTeam Member

Thank you. My caregiver , husband, goes to all my appts now. I use Notes on my phone for my P dr. Print a copy for her and I have mine. Easy way to hit all the concerns I may have.
Last time I saw her she asked if I had ever thought about DBS. No. 🙃

October 22, 2023
A MyParkinsonsTeam Member

My husband has been taking Amatadine for over 10 years with other medications and thank God he is doing really well.

October 9, 2023
A MyParkinsonsTeam Member

Without playing doctor, did you have blood work before you started it? If memory serves me right, that was a recommendation for it. Look it up on google please and you will find a myriad of information on it. Remember, you have to be your own advocate.😎

September 25, 2023
A MyParkinsonsTeam Member

Theodoradestephano that was the worst drug I’ve had taken side effect so horrible I know everyone is different but better to know

September 25, 2023 (edited)
A MyParkinsonsTeam Member

My husband has been on Rytary which caused some cognitive issues years after he started and now is on Sinemet and it seems to be helping.

November 10, 2023

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Tampa, FL