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Neurologist team is considering putting me on Nourianz for another neurological disorder. I take no levodopa meds.Any thoughts ? 🌈TheaD

A MyParkinsonsTeam Member asked a question 💭
Palmyra, VA
June 8, 2024
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Answer Summary

Members responded to a question about Nourianz for a neurological disorder without levodopa use, with many sharing that they were unfamiliar... Read more

Members responded to a question about Nourianz for a neurological disorder without levodopa use, with many sharing that they were unfamiliar with the medication. Several members noted that Nourianz is designed to reduce off times in Parkinson's and is meant to work alongside carbidopa/levodopa, raising the shared concern of what its purpose would be without that pairing. A recurring theme was encouragement to ask the neurologist detailed questions, seek a second opinion, and weigh the risks carefully, with one member sharing a personal experience of personality changes and severe headaches that led their doctor to discontinue it.

A MyParkinsonsTeam Member

What is the point ? Parachutes are used as additional breaking to slow dragsters down but you wouldn't go racing just with the parachute, they only work in conjunction with the car

posted 3.5 seconds ago @ 310 mph

June 14, 2024 (edited)
A MyParkinsonsTeam Member

no. That's my second opinion 😄

June 9, 2024
A MyParkinsonsTeam Member

Nourianz is not Carbidopa/Levadopa. It’s an antagonist meant to be taken in conjunction with C/L to help with off times.

If you’re unable to take the C/L I don’t see the point. That would be my question: “What’s the point?”

June 14, 2024
A MyParkinsonsTeam Member

Still no thoughts, well not that would interest you Thea 😄😄😄

June 10, 2024 (edited)
A MyParkinsonsTeam Member

Oh goodness, you certainly don't want to go back on C/L. My husband's neurologist suggested he try Nourianz since he was having some walking issues. Insurance company denied as it's on a higher tier. He doesn't have any tremors and this drug supposedly helps with tremors.

We have different insurance now, so I might investigate this again.

June 12, 2024

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